I have actually been relatively lucky, because it looks like my surgery for mouth cancer (rim mandibulectomy, flap from arm, neck dissection) has been successful and removed the cancer.
On one level I am relieved and grateful, but at the same time the shock of a cancer diagnosis in my fifties and the sudden, unexpected plunge into quite radical treatment has left me with a loss of confidence in my health, guilt about past choices, and anxiety about a recurrence or further cancer.
We are told about all kinds of risk factors and possible carcinogens, and I now look back and feel I made all sorts of mistakes.
I was a moderate drinker (liked a couple of glasses of wine with my dinner every day). I enjoyed a bit of English summer sun. Apparently this was enough to give me mouth and skin cancer.
I never smoked, but I burned incense sticks, had log fires and burned stuff on a garden bonfire and used white spirits when painting (oil paints). I now have enormous worry about lung or nasal/sinus cancer lurking round the corner even if I don’t get a recurrence of skin or mouth cancer.
Rationally I know there is no simple equation between what we do and any cancer we get. Some things are just about chance. But my recent experience has made me feel vulnerable and anxious whereas before as a slim, fit person under sixty I was probably a bit complacent about my health.
I haven’t fully recovered from recent surgery, but am making good progress. What I am struggling with is getting back to enjoying life without being preoccupied with worry about past risks and future cancers.
Some help to improve my mental attitude would be most welcome.
Hi LadyLee
I lost all the teeth( which I think amount to 7 or 8), my gum and a small segment of bone in my jaw on my lower right in 2013 and did get a denture made that clipped to one of my front teeth as implants were not an option because of the radiotherapy on that side.
Unfortunately for me when I tried to eat using the denture it would dislodge as it only had one of my front teeth to clip onto. I should have tried securing the denture with Pollident denture glue as the denture had no gum to fit over and the area was completely flat but I did not think about that then.
I should have talked to my dentist more about it as I was rather ignorant about how to cope with the denture so please follow up with your dentist if you have any trouble with your new denture.
Mine turned out to be more cosmetic than useful for eating but I’m sure that is because I needed more advice on coping with it.
I found at that stage I could manage perfectly well eating using the teeth on the other side of my mouth so did not really have a big issue. It is only now after my maxillectomy where all the teeth on my upper left jaw were removed that I am having issues.
With fewer teeth removed than I had you have a much better chance of the denture staying in place.
I am really interested how you get on and hope that the denture is very successful for both you and Cathy.
Lyn
Sophie66
Reading your comment it sounds like the issue with your denture was probably that a clip that attached only to a front tooth wasn’t enough for stability. From what I gather they now have an attachment that goes right round to the back teeth on the good side.
I must admit I still wonder how it will work, because the repair flap does not recreate the hard ridge of gum which is lost but is, as you say, flat.
It’s certainly worth a try, but I’m prepared for the possibility a denture won’t be practical and I’m not sure I can face the more invasive procedure required for implants even if I have enough bone left to support them.
Hi, yes I’m wondering how anything will stay in place as there is no gum to sit over/on , will have to see …..implants may be an option , I didn’t need RT but not sure if I want go through all they would entail, have my second appointment this week …I will post my progress……
I will post how I get on with my dental work…..my surgery was at the Luton and Dunstable hospital , and I’m seeing the Restorative Dental dept there too….I really wanted to go to Addenbrookes as that’s so much closer but it apparently wasn’t an option.(15 min drive to Addenbrookes 1 hour to Luton)
I also can’t see how a denture will stay put if only attached to one tooth, it will be interesting……I can manage without, just eating on the other side, biting is a bit more challenging but I shall give it a go, and as you say not sure if I want to go the implant way , even if possible as it would be a bone graft and a couple of years…will keep you posted!
thank you for the replies, it’s interesting to see how others have fared after the initial surgery, have trawled this site but few have had the same “problem” for want of a better word!
Hi Cathy,
we’ve all been there. It’s normal. Like a unwelcome house guest who has left now but has taken a key, they may return or they may not - but it doesn’t stop us worrying. One thing I found helpful was when one of my surgeons told me that no one can control the biology, they & we never could & never will. Try not to worry about the biology, accept what it is & focus your efforts on what you can control; your recovery, your lifestyle, your attitude. Moderation in everything including moderation! Be kind to yourself, it’s a tough gig & you’re in good shape. I am one of life’s worriers but am starting to accept things a bit more. Counselling helps. Do your surveillance checks & go to all your reviews. You might surprise yourself how you can get back to a new normal. Good luck, we’re all right there with you.
Steve
Thank you. Some useful thoughts there. Not dwelling on the biology but concentrating on what I can control is a good approach. I’ve already cut out the automatic glass of wine with my dinner and don’t miss it at all.
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