Hello All
Not been on here for a while, was taking my 3 months off from the roller coaster. Been back at work doing my 10 hours a week in 2 shifts, to be honest it has been harder than I thought in terms of energy levels but also been good for my mental health in term s of some normality.
I had my first camera up the nose in over a year this week, good news is everything looks OK. Found it funny when consultant said they would see me every two months now. I asked if this was necessary as they have left me a year without a look see. I have a phone consult with lung oncology on Monday which I am not happy about, I have had no letters and last conversation said this 3 month check was to have a chest xray and discuss, no xrays booked so this will be a waste of time.... Also have IBD on Friday first time in 2 years due to other things going on. Ho hum, Regarding lungs I get hay fever and due to scarring left on my face and nose and the radiotherapy have been struggling a bit wheezing like some old bagpipes, dont think I will get much better on this score but it does not help with the fatigue. Still get some bad days where I feel wiped out.
Next Friday is going to be fun, I have Sherman booked in the groomers at 9.00 he takes 2 hours to do, then supposed to be in the hospital at 12.15 if I make it with the manic lunch time traffic on a Friday, then have to get the cat to the kennels at 2.00pm because we are off on holibobs to Cornwall with Sherman early hours of Saturday. Going glamping on the hills near St Ives, its all dog friendly as the lady that owns it has 8 Newfoundlands but its the first time we have gone away with Sherman. Keep your eye on the Cornish local papers as we get barred from everywhere with his naughtiness. Have visions of a dog fastened to a bell tent being chased by two humans flying over the Cornish hills. He may be an angel ha ha.
Anyway keep safe and well all, if anything happens from all my check ups will let you know but fingers crossed, I keep telling everyone that the devil decided against me and has sent me back to annoy everyone a bit more, hells not ready for a mad St Bernard lady.
Lots of love
Mo xx
Oh Mo. You brighten my day when you post. Heaven awaits you but not just yet. I bet Sherman will be as good as gold and not let you down.
I’m so pleased you are coping so well with what’s been thrown at you.
Have a great holiday and don’t share too many Cornish teas with Sherman. And don’t forget, always jam first.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Hello Everyone, just thought I would swing past and update with a letter I received this morning from Genetics. Those of you that have followed my strange roller coaster ride know that they were looking into my genes to find a cause for the multiple growths some cancerous some classed as Keratoacanthoma's. After 6 months of waiting it has now been confirmed that I have Ferguson Smith Syndrome, this is a very rare condition and I await an update with the genetics team later this month to discuss. A bit concerned that this is familial so my children and grandchildren will have inherited it in some form. Well always knew I was a rare old bird and just had it confirmed.
Hope all of you are doing well. My latest tests all seem to be OK which is great news although I have just had a chest infection which knocked me flat probably due to having a bit less lung. Sherman is being a good boy and enjoyed his week in Cornwall where much to my surprise he was beautifully behaved.
Here he is at Lands End.
Lots of love Mo xx
Hi Mo. Thank heavens they’ve got to the bottom of it. I had to look it up; it explains everything that’s happened. You’ve had to endure so much uncertainty.
Sherman looks really cool in his natty bib. I hope you managed a good time, all of you.
onwards and forwards then and fingers crossed for the family xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
