Hi All, weekly update for Tim(wanna play guitar)
Diagnosed with Tonsillar cancer last year right side T2N1M0 HPV+16, treatment Chemoradiation 6 x Cisplatin + 30 x rads competed on 5/3/21.
Well, strange week! I had a visit to ENT on Wednesday to a consultant(surgeon) who examined my throat with a camera and said he couldn’t see any evidence of cancer! So we’ll pleased. It’s only the first hurdle though as I have an MRI next month to check what you can’t see. I’ve got a swollen upper lip which probably only I can notice be he duly checked it and said it’s most likely Lymphatic fluid.
Another strange event with my knees. I noticed that I had small black “things” on my knee area. I thought it was hair follicles growing back. I squeezed a couple and out popped old splinters of grit or wood! They’ve all come to the surface. It’s odd because they must’ve been there for some years from the working/sporting part of my life. Anyway, one to watch out for with Chemoradiation.
Here's a summary of side effects:
1. Neuropathy. Still have it, although it feels easier I’ve hopefully turned the corner with this as it can make you drop things and you can cut the ends of your fingers without feeling it.
2.Xerostomia(dry mouth). Sadly, this has gotten worse and I’m at a loss of how to combat it even with Xylimelts, Biotene and now also Saliveze spray. The Consultant said it was just time.
3. Taste. This is a partner in crime with dry mouth. Suddenly I have some taste then it disappears. Very frustrating as coffee(one of the things I could taste) sets my tongue off and causes fissures.I’ll have to get a new strategy.
4. Mind. Not too bad this week as I’ve had a positive from ENT but there’s always places you’re mind can take you to bring you down. Must keep busy.
5. Fatigue. Again, slowly improving. Depending on the quality of sleep I get establishes my energy levels. I’ve only had one “event “ this week where I just had to lye on the settee and snooze it off.
6. Mouth. Would like to say it’s improving, but my mouth has been the same for the last 2 weeks(sandpaper). Hopefully, I’ll see some improvement in the next couple of weeks.
Well that’s week 11 post treatment and I think you’ll agree it’s slooow improvement. When I compare it to say week 2/3(the worst period) I have to admit things are much better. As long as it keeps going in the right direction I’ll accept it. I know the radio is a brutal treatment but can be dealt with. We are all impatient when it comes to health and just want to be normal. Anyway, that’s me for this week. I’ll post next Friday as normal. As always, any comments, ideas or advice is most welcome.
Have a happy, healthy week . Best wishes Tim
Hi Tim
2.Xerostomia(dry mouth). Sadly, this has gotten worse and I’m at a loss of how to combat it even with Xylimelts, Biotene and now also Saliveze spray. The Consultant said it was just time.
This is rubbish and stays with you for ages. Chewing gum to stimulate what salivary function remains and acupuncture help
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Tim. I used to swear by Peppersmith which is softer than Spry and cheaper. The peppermint after two years had exacerbated my reflux so I’ve moved over to Wrigleys cinnamon. Whatever you get don’t get fruit flavour which has citric acid in it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
