Two years ago today at 1pm I slid off the radiotherapy treatment table for the last time
After six weeks of treatment I felt a wreck but deliriously happy. If Singleton hospital had had a bell I'd have rung it off the wall fire alarm fashion.
I had the past weeks schedule in my pocket which I asked the radiographers to bin with my mask. Bye Bye and I walked out into the sunshine, then went home to sleep for two weeks.
I just wanted to update to say two days ago I had a hospital check up with NED.
Tonight I am celebrating with a huge sirloin steak a pint of ale and some Victoria sponge for pud.
It's been a bit of an up and down road but I'm fit again, saliva isn't much of an issue though the dryness is a reminder but tolerable. I can eat more or less anything and life has returned to enjoying splendid isolation in rural Wales with husband, dog, hens and bees.
Six weeks after treatment finished was a turning point and 12 weeks a real watershed and I find that improvements still continue.
So this is a short note to everybody just starting out on what seems to be an epic expedition to say that's it's just a temporary malfunction with normal......ish service resumed.
Stick with it, trust your team even if you can't trust your body at times and lean on your family.
Thanks Dani. This is good to read and very uplifting. It’s three weeks ago today that I waved bye bye to the radiotherapy team and things are now beginning to improve slowly. Day by day it’s two steps forward and one step back, but thanks to my new friends in here I know what to expect so am not unduly worried.
I dream of a sirloin steak and a pint, and it’s on my list of things to do once I’m feeling fairly normal again!
Congratulations
Mark el a rare rib eye is still one of my favourite foods that I coukd manage quite early in recovery
so keep aiming
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Dani
As we say onwards and upwards to infinity and beyond .
Ad you know I am 6 months almost further on and yes improvements still happen albeit slowly but I have entire periods where mouth is normal.
Hugs
Hazel xc
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Knitty.
Thank you
No Evidence of Disease ( I think it's an Americanism) The same as remission rather than cure. But good
Well done Dani,
Thanks. It's been an emotional day
Ad you know I am 6 months almost further on
I'm on your tail....trying ti catch you up
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Dani,
So glad you have reached that important milestone with such good results. Telling these stories is so important for people on here as we all hear the doom and gloom, but rarely the really positive outcomes
Here's to the upcoming years being equally as good for you
Whatever cancer throws your way, we’re right there with you.
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