New here - waiting on biopsy results

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Hi everyone. I'm reposting this from the wider new to the community forum as suggested. 

I had a persistent lump in my tongue and was referred to the head and neck clinic at hospital. After an examination by the doctor they said unlikely to be cancer but wanted to carry out a biopsy which happened just a week later. At the biopsy they again said unlikely to be cancer but of course would be tested. They asked if I would be happy to just get results over the phone and I said yes.

Just six days later I was called and told I had a face to face follow up in three weeks. A few hours later that afternoon I was told that had been brought forward by almost two weeks. Having since had written confirmation of the appointment via email I can see it is now described as "face to face follow up urgent".

So, I know there's no definitive answers until I actually have the results appointment but the fact they've gone from seeming very unconcerned to having made the follow up face to face instead of over the phone, brought it forward by a fortnight and have marked it as "urgent" all seem highly indicative to me that this isn't going to be good news.

Has anybody had a similar experience in getting their biopsy results with acceleration and urgency?

Despite this I'm still over a week away from the actual results appointment and I'm spiralling badly. I don't know how to keep things together and act 'normal' for another week in front of my family and at work. Any advice would be really appreciated. 

  • Hey! I think we are in the exact same position!! I am waiting for core biopsy results now, appt next Thursday! I am going mental with trying to just “get on with things” it’s so hard as your head takes you through every scenario, doesn’t I?? 
    im really sorry you are going through this! Do you have any symptoms other than the lump? And is it growing/changing? 

    When is your appt? Maybe we can help each other through the uncertainty?

  • Hi  sorry you’ve found yourself in here but now you have stick with us. best advice that I can give you is to keep away from to Google it will send you into rabbit holes more than you already are. Unfortunately waiting is the worst part . Our minds and bodies do go into very dark places. I was the same waiting for confirmation. Briefly I was put on the head and neck Cancer pathway my first appointment. My consultant wasn’t concerned. Did a fine needle biopsy she was thinking latent tb I walked out of the door we will check for Cancer cells as well so fast forward to my appointment week later and the nurse came up to me in the waiting room and very quietly said your Hazel from last week well that said the alarm  bell was ringing and yes I did have HPV driven tonsil cancer with seven effective lymph nodes but here I am eight years later living a good life head and neck cancers respond extremely well to treatment. 
    Try to keep busy and what we did was binge  watch numb minding box sets.  That’s not to say u wasn’t scared I was v there’s lots of us that are still on they had a neck cancer for him and we’re here to help

    hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • It's really hard isn't it. I'm trying to avoid anything on Dr Google but reading here and on CRUK pages about what the different treatments would involve if it is cancer and I'm terrified really. My partner knows and is trying to be positive and keep me positive but I am finding it hard to feel that way. Our kids don't know anything yet and trying to just be happy and play normally with them when I'm feeling like this is so tough. 

    I think they removed the entire lump (which was deep inside the tongue) during the biopsy but can't be certain as the stitches haven't all come out yet. On other symptoms I feel like my throat has been sore and I may have another slightly different looking patch on the surface of the other side of my tongue as well. But I don't really know and this could just be me overworrying.

    Good luck to you for your appt and let us know how it goes. Mine is on Friday 29th. It's going to be a long, long week. 

  • Thanks Hazel. Trying to do what I can to keep busy. Have got next week off work because it's half term and almost wish I didn't because at least with work I am kept busy with meetings etc.. 

    Got a lot of TV I need to catch up on but any time I watch it now I swear there are more cancer charity and research ads than I ever noticed before! 

  • Oh my goodness, I feel exactly the same, they’re bloody everywhere! 

    mine is on Thursday but a week feels painfully long, so I understand totally x 

    I think like all the advice the only thing to do is to try & stay as busy as possible x I’m sure your kids can provide lots of distraction!! 

    sending love Heart️ 

  • So true it’s everywhere but I think it’s because I sense a heightened previously would let it wash over it but because it’s at the forefront of your mind it seems to be there all the time. Just keep busy getting the garden going a long walk plan a holiday don’t book it but just plan anything to keep you occupied and we’re all here like I said happy to help

    Hazel 

    P s  read my blog that’ll send you to sleep. lol 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • HI and welcome ,its easy to say dont worry but its natural to do so, just bear in mind if it is bad news that head and neck cancer has really good survival rates and your team will be doing their utmost to get you sorted .i had a tumour at the base of my tongue and it had spread to my lymph glands it wasnt possible to have surgery so i had to go the chemoradiotherapy route .I was diagnosed at the end of October and by early December i was having treatment i am waiting results of my MRI scan to see if im cured .I hope its good news for you but if not their is loads of support good luck .

  • Hi everyone. I'm reposting this from the wider new to the community forum as suggested. 

    Hi again. I’m glad you joined. Stay with us and we’ll look after you. There have been some excellent replies already. Fingers crossed for you. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • My dad was the same ,he had a lump in his neck ,had biopsys done and was scheduled for follow up and results appointment almost six weeks later ,but got a call and was seen in less than ten days....jump forward and he had a operation last Wednesday to remove part of his salivery gland plus a neck dissection...he's home now and recovering.

    We thought the same ,if they drag you in sooner is it be abuse they need to act fast and we were alas correct.My dad is 79.

    I hope everything goes well  for you and whatever treatment you need goes well

    https://community.macmillan.org.uk/cancer-blogs/b/speaking-to-an-empty-room