New Here

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Hi all. I am new to this forum. I was diagnosed with head and neck cancer earlier this year. I have had 6 weeks of chemo and radio therapy that finished 3 weeks ago. I have a feeding tube in. Currently really struggling mentally as little improvement since ending treatment and the feeding tube is really disruptive. I find myself awake for atleast a couple of hours each night and my anxiety, which I don't normally suffer with, goes into overdrive. I really need to see some signs of improvement to keep my spirits up.

  • Hi James. Take a deep breath. Don’t expect too much. You are just at the peak of the radiation working. Recovery is a long process and not linear. I think most of us here feel a bit better by 6 weeks and turn a corner by 12. I wasn’t happy with my recovery till six months and that seems to be par for the course. 
    I used to take the dog out for a walk to have some time to myself but before I could manage that I pottered round the garden. Fresh air and doing something you like really helps. What also helps is knowing things get better and there are the folk on here to talk to. 
    if you are wide awake in the middle of the night join in here 

    https://community.macmillan.org.uk/cancer_experiences/cancer-chat-forum/f/chat-13/295498/awake-and-up-all-night

    Stay with us and we will help you through 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you Beesuit. Appreciate your reply and insight in to what recovery might look like. I had no idea it might take so long to get back to real normality. 

    I will definitely be up and about at some point in the wee small hours 

  • HI, James its really tough i know, i finished my treatment the same as yours, mid January the six weeks after treatment were not pleasant but things do improve i did not believe they would at the time but now it seems like a distant memory and i feel much better .The side affects and trying to ease them seemed all consuming i know its hard but try and do something to take your mind of things i found that colouring  books helped me to concentrate on something else just for a while .Things may get worse before they get better but the time will soon pass keep reaching out to us and we will try help you through it ,stay positive and keep thinking in a few weeks you will feel much better .Good Luck .