Diagnosis overload!

Can relate to not feeling real I was diagnosed 4 weeks ago and it's like it's somebody else not me got to have a Rhinectomy in 13 days and it still unreal as for claustrophobic I refuse to go in MRI UNLESS unconscious.you just gotta hang in there take one day at a time remember your in control 

Sorry to hear this and hope it all goes well ️‍

I can't imagine how you must be feeling and yes it is all about one day at a time thank you for replying 

Hang in there I had a liver transplant back in 1996 and thought the world was ending then but you get through it and hopefully see the other side.i look at it like well that's another day done I'm closer to the other side of this horror 

Hi Nanzo and welcome.

Waiting  is one of the worst parts of this whole road. All you can do is to keep busy doing the things you like. There is no  doubt that the treatment is pretty nasty but your team will do all they can to make you as comfortable as can be providing you let them know how you feel every day. Most of the side effects are manageable...honest

I am just about seven years clear of treatment for base of tongue cancer and I'm living really well.

There is a really useful thread on what to expect and how to prepare for treatment, just click HERE and if you can't sleep there's the the AWAKE and up all night thread if you want to chat

Thank you that is so helpful  

This is the worst time when you are in limbo between diagnosis and a treatment plan.  I managed my state by going on holiday - twice.  During those holidays I took charge and arranged all my scans and other bits that needed doing rather than sitting at home waiting for things.  That approach is not for everyone, but if you can keep occupied it does help.

Hi mate ,sounds similar to my cancer i was diagnosed with squamous cell carcinoma which is a common oral cancer and is a type of skin cancer mine was at the base of my tongue and in both lymph nodes in my neck ,Speak to your consultant and community head and neck nurse about your pain  and fears of treatment they are there to make it a good as possible .My treatment was 6 sessions of chemo and 30 sessions of radiotherapy i wont lie it was difficult getting through it but i did with the help of the cancer team and my wife .Hopefully your treatment will not be as intense .I was well enough to go on holiday while waiting for my result which did help take my mind off it a bit .

Yes sounds a very similar thing to yours and has only been staged at N1 as not knowing the primary site.

Will know more once histology of tongue removal comes back as to how intensive the treatment.

Had already booked a holiday for July before I even knew I was going to be tested for cancer so just hoping going to feel ok!!

Thank you for sharing ️‍