Newly diagnosed

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Hello

I have been diagnosed with stage 4 hypopharyngeal cancer - I have been choking we with some foods and drinks and wanted to ask about foods that help and what people did about naso-gastric feeds and when they made a decision to have this put in

Thank you 

  • Hi  

    Have you started any treatment yet? 
    I had an NG placed in week four of radiotherapy when the pain stopped me swallowing anything. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

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  • Hi Boonz, Welcome to the H&N forum sorry to hear you have been diagnosed with the cancer, I had similar mine was in my Voicebox so grade 4 so had surgery to remove it a Laryngectomy, at least I avoided the chemo and Radiotherapy treatment, although you don’t mention what treatment plan they are giving you.

    To the question I was on a nasal feed tube for approx. 5 days after the operation, it’s a very slow feed and supplemented with injections into the junction of liquid, if I remember correctly my normal daily intake was over 8 hours, its not uncomfortable at all just a nuisance having the tube there and keeping it in place. So it will be an only option for you for q while I’m afraid as you will have to have nourishment etc

    Please come back if you want more help but I would reach out to the Head and Neck Forum as there are several people like me on there

    community.macmillan.org.uk/.../https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/

    Stay safe and whilst it might not be all the same Happy Christmas and hope the New Year goes well

    Tony

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    Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022

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  • Although my cancer was eventually found at base of tongue I had a PEG inserted before treatment started.  Personally I could not face the thought an NG tube - others can't face the thought of a PEG.  The PEG worked well for me and I had absolutely no trouble with it from the day it went in until around 6 months later when it came out.

    Peter
    See my profile for more details of my convoluted journey