Chemoradiotherapy question

You can request a meeting with them, I just dropped an email to my CNS, she arranged everything.

Hi I met my speech and language team prior to treatment and was lucky enough  ti see one ir the other  every week during treatment. I would contact your cns to query this. You will  see the radiotherapy team every day so they are your first point if contact tell them straightaway any issues and they should be able to sort things or make appointments for yiu to be seen. My cancer centre also had a dedicated nurse station who you saw weekly or more often if needed. 

some weeks I had meetings most days so they did try  to arrange them around radiotherapy times or in chemo days when I was there longer  

hugs Hazel 

Thanks Michael.

Ok thanks Hazel. I waa worried about him not doing the exercises he should be doing too. I think we'll ask about it on Monday in the radiotherapy dept 

The swallow and jaw exercises are for life. I still do them 7 years later. Don’t even realise I’m doing them now. 

Good  luck he will be fine it’s not easy but it’s worth it 

Hazel x

RadioactiveRaz said:

The swallow and jaw exercises are for life. I still do them 7 years later. Don’t even realise I’m doing them now. 

Same here, though I do get a little lazy. I do check my mouth opening now and then. Still manage the three fingers. 

I saw mine before I started and after I ended treatment as well as a dedicated appointment each week during treatment.  They we also available at other times on the phone should I need them.  Mainly this was the dieticians but they would call in SALT if needed - mostly not needed for me.

Thank you all. I will mention on Monday that perhaps seeing them 5 weeks in seems a little bit concerning. I will update you all on how it goes. 

Hi all. With Monday coming ever closer I'm getting myself in a real mess with worry. I was up at 1.30am googling side effects and seeing the severity of them has just thrown me into turmoil. I'm anxious about spread although you have all reassured me. My mind is just spinning with all the what ifs. Also he has 2nd chemo on 22nd December at the beginning of week 4 and I'm worried about Christmas and how that's going to look. I'm so sorry, I just don't know who else to talk to. 

Please don't google side effects.  Chemoradiotherapy affects us all differently.  There will be some side effects, but you'll end up reading about things that might not happen to your husband.  For me the worst side effect was that the chemo triggered an instant menopause, so that's not something for your husband to worry about!  I worried a lot about possible pain, but I was fortunate to get away with minimal pain relief.