Tonsil Cancer - the journey begins. HELP!

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Husband diagnosed with Tonsil Cancer which is also in his right neck lymph nodes - HPV - P16 (or is it P14?) positive - so apparently that's 'good'! We’re in our mid 60s, non (EX) smokers or drinkers – healthy diet.
[He is also LADA (Type 1.5 diabetes) if anybody has any experience of that too.]
First symptoms appeared around July give or take a couple of weeks - and I'm getting scared as it's now November... with the delays caused by awaiting biopsy results - 
We're just about to start the journey - and already the stress is getting to us - HOWEVER my husband is the original 'man' who says he's NOT feeling stressed and he's gone through much worse when he was a kid with abdominal surgeries... but (understandable) he’s pretty nippy with me at times.
We’re awaiting final needle biopsy results from left lymph nodes to see if it’s in the left side as well as the right.
I’m trying to plan ahead for his care etc and doing 3 to 4 months of work in the same number of weeks so I’m tired and a tad stressed too…

I Just want to know what to expect. Can anybody help me please – we are due to meet our Cancer Team again next week to find out what’s happening but there’s nothing like hearing it from folks going through the same – or having done so.
1) If it hasn't spread to the left then he wants to go for the surgery option - enter the right side of the neck, take out the affected parts - then 6 weeks of radio - but not so heavy duty as...
2) if it HAS spread to the left nodes then no surgery - instead 6 weeks of heavy duty radio plus chemo in weeks 1 and 5.

Can anybody tell me what to expect please? Thanking you all in advance. 

  • Hi and welcome. 
    This is a useful thread to start with 

    https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/diagnosis-and-treatment/287136/helpful-tips-for-those-about-to-start-treatment

    And you could take a look at my blog for the order of things. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi HPV 16 positive is a good thing. The tumours  respond well to treatment. I too non smoker non drinker but i got  cancer HPV  16 + This is  fastest growing  in numbers head and neck cancer steadily increasing sadly in our generation and will continue in the next generation. My grandson has had the HPV vaccine so hopefully in years ti come it will be eradicated, providing more take the vaccine but that’s for another day.  

    Your hubby will be processing what’s happening p, once treatment plan is in place everythjng gets a little easier when yiu kniw what you’re dealing with. I had 35 radiotherapy sessions and 2 of planned 3 chemo. Surgery wasn’t  an option for me as the lymph nodes were too close to spinal,cord. 

    my blog below will give you my timeline I did a weekly report. Younmay find it useful to show family and friends. Especially n for after treatment finished when people think we are back to normal. It takes a good while once treatment finishes but friends can think we’re over it just a forewarning. 
    Yes we get stressed and yes I wasn’t always nice to my husband who did everything for me. But it was the stress of treatment so be aware. 

    Any questions  just ask. 
    hugs Hazel. 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/