Newly diagnosed , possible throat cancer

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Hello, I have just been told that the biopsy from my neck lump is cancerous and they think it could be throat cancer. I have a sore throat and tongue. The doctor I saw said she wanted an MRI of my neck and also a PET scan of the rest of the body and I have an appointment in two weeks back at the clinic to discuss. I have already had the MRI appointment sent through for the day before my clinic appointment but no PET appointment yet. I am finding the waiting very difficult and already my throat and tongue are feeling worse together with the tinnitus , I’m worried that the PET scan won’t get booked and they’ll put off my appointment for another week, has anyone attempted to pay privately for a PET scan , and would this take me out of the NHS system ? I just want to know . I also read a post that said you should try to eat a decent amount of calories and avoid sugar and carbs - is this true ? Sorry I’m all over the place and can’t find any peace . 

  • Good to hear it's booked. One more step forward. Happy birthday for Saturday. 

  • Hi I’m alsom7  years post treatment and I had spread to 7 lymph nodes plus spread to soft  palate. The chemo radiation took care of everything. *. Dani’s has covered the sugar piece so I won’t , but suffice to say I hate numerous chocolate magnums while waiting  for treatment and post treatment custard and trifles  were part  of my go to food   Try to keep fit put a few lbs in if you can. Most importantly remember head and neck cancers respond extremely well to the treatment. 
    My pet cat scan was only  a week before treatment started so don5 worry about that is it’s not  through prior to treatment starting. The mri will show them what they need t9 se. 
    The waiting’s hard it’s the fear of the unknown. But take comfort there’s lots of us still on here years after. 
    I Had  HPV driven tonsil cancer  edit just seen re pet scan happy birthday the start of ridding cancer from your body. 
    hugs Hazel xx 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you Catriona , I really appreciate it 

  • Good morning, welcome to the forum. 

    it is a scary time when the diagnosis is confirmed and the scans etc are upcoming and you feel like you’re waiting around. It’s been said already but there’s nothing wrong with a little repetition - the scans will come in time and after that, the treatment can begin. It’ll feel like months and months but it won’t be. Before you know it you’ll be starting treatment and on the road to recovery. 

    I had tonsil cancer that had spread to the lymph node on the right side of my neck and the neck lump is the classic presentation. The treatment is tough, no point in lying but it has a very high success rate.

    Stick to this forum as opposed to google searches. The forum is full of folk who have walked the walk and we’re happy to give advice. 

    it’s okay to have bad days. We all do, but you’ve got this. Right facing fist

  • Thank you, Im in such a bad place at the moment , trying to tell myself that things can’t have changed that much since Tuesday when I got the news, but I feel so tired, aches in various places that I think the cancer has spread to , I know what everyone has said in this forum about trying to be positive and a good outcome , but I just can’t get my head there. I’m trying to normal things but nothing feels normal and I can’t concentrate on anything or sleep .  Sorry there’s nothing anyone can say, but it feels better to write it down 

  • Hi there, the only thing we can say is we've all felt exactly the same. It's a really scary time. Stay with us we will help you if we can. We've all been through it and completely understand how you're feeling.

    Big hugs

    Debbie 

  • PET scan this Saturday

    Good luck for today....I bet you are missing that morning cup of tea.

    I hated the fact that the world was still turning, kids were playing in the school playground, people were driving to work and the daily news seemed as miserable as ever but nowhere near as miserable as me! But here I am years later, a bit battered with old age but cancer free and well. Hold onto yourself. You'll get through this.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you for thinking of me it mean a lot x Marilyn