1st post

I've just read your blog. OMG! I couid have written it. My experience was almost identical to yours. You describe it perfectly. I too diarised most of my treatment. One of the things that sticks in my mind though was how frightened I was of the mask. I needed a sedative to have it fitted (irrational) I know! It wasn't until week 4 that someone suggested cutting the eye holes on, although I'd kinda got used it by then, it was a good send. Don't know why they didn't suggest it earlier. I too was admitted to the hospital exactly one year today with 10 sessions of radiotherapy left. I understand your experience exactly and mine was quite similar. X

Hey… but we got through, didn’t we? AND help others here which, to me, is an awful lot if the battle. 
Keep going. It really is worth it … oh and thanks you for being so kind about the blog. 

Hi Livdad, 

my husband is about to have radiotherapy, so I’m sorry to hear your having a rough time. Everyone here is so lovely and helpful, I hope you’re are feeling bettersoon

Paula x

I totally agree. I wish I knew about this blog a year ago. Thank you for your kind reply. 

Hi welcome from me. I was plagued by ulcers full,length of tongue Gelclair on prescription gave  some relief. Ask for it to be prescribed. Treatments hard but I’m 7 years on and living a great life. Ask any questions someone always happy to help 

best wishes 

Hazel 

Hi Hazel,, just reading your post there, Gelclsir, what did you f’ing it good for, was it ulcers on the tongue ? How about oral thrush ?

thanks 

So today's gift very swollen jaw line absolute agony.

Any tips ?

Legin13 said:

Gelclsir, what did you f’ing it good for, was it ulcers on the tongue ? How about oral thrush ?

Hi Nige 

Gelclair acts like a barrier sticking to sores in the mouth. If you have thrush and are sore it might help. It’s worth trying while. Your antifungals get to work. 

Don’t move out of hospital after RT till they write you up something better for pain relief. Pack an overnight bag in case they want to keep you in. 

I’m so sorry to hear of all this pain that you’re going through. I was fortunate that I barely needed pain medications during my treatment nor recuperation. Having said that in week 3 of RT when my taste changed I also developed pain in the roof of my mouth for which my oncologist prescribed Pregabalin which was effective from within minutes of taking it. It had to be introduced gradually, the dosage increased gradually and after a week or two I no longer needed it but I noticed there hasn’t been any mention of this pharmaceutical so I wonder if it might be worth discussing with your nurse & oncologist just in case it might help?