Welcome Livdad to the forum. sorry you find yourself here. I too had cancer of the tonsil and a lymph node. I had two operations and radio/chemo therapies. It is a tough road, but there is heaps of help and support on this wonderful forum. The people on here are amazing, any problems, worries or questions someone will always answer you as best they can. We have all felt the way you do now, but it does get better with time. It does take a long time and the journey is tough but you will get through it. Keep coming on here and posting everyone is here to help and support. Read my bio to get an idea of something you could look forward to, but remember, everyone is different and even if you have the same form of cancer as someone else and the same type of treatment doesn't necessarily mean your journey will be the same. Big virtual hugs.
Hi Livdad. Welcome to the forum. Nearly everyone here has had radio and chemo. The radio is tough and the pain you are experiencing in your mouth unfortunately is one of the side effects of treatment. Are you on sufficient pain relief? I started off with panadol and then was put on morphine and fentanyl patches. The extra pain relief did help. Please talk to you radiotherapy team and have your pain relief reviewed as that is crucial. Others have been put on different pain meds and it does make a difference. If you have a feeding tube do start using it so you get sufficient nutrition. You are halfway through your treatment so hold in there you can do this. Take one day at a time and you will get there in no time and it will become a distant memory. You are tougher than you think. It is now 6 years since my last radio and I am living and happy life and you will too.
I found that Difflam spray and mouthwash helped a bit, which were prescribed for me by the team. I also bought a load of Bonjella mouth ulcer gel and that helped too. Hoping you find some sort of peace from it soon. Big hugs.
Tonsil cancer also, 2 years since Chemotherapy Radiotherapy finished, mouth pain was managed by Oramorph and slow release morphine, Oramorph dose was upped during the worst of the pain on CNS instructions, as stated Difflam spray also helps, don't suffer in silence let oncology know about pain issues.
