Hello you lovely people,
I'm a single dad of young boys.
Yesterday, my dentist said he was referring me for a biopsy of the apparent ulcer on my tongue.
This came as quite a shock.
For about 5 months, I'd had sharp teeth irritating my tongue and mouth.
Eventually, I went to the dentist. Never even considered anything sinister.
A month ago, he filed down one sharp tooth and scheduled a follow up appointment.
At this new appointment yesterday, he filed down the other sharp tooth I'd identified, then talked about the referral.
He said my ulcer was "quite large" and hadn't healed in the way he'd expect.
Ever since that moment, I've found myself almost frozen with fear, as if I've actually received a diagnosis of mouth cancer.
Which I know I haven't, but I can't help imagining worst case scenarios, which really doesn't help.
Neither was a GP especially helpful when I went to see her yesterday afternoon. She couldn't give me any perspective, or any odds, or any reassurance really, apart from to say it was "promising" (I think that's the word she used) that the lump on the side of my tongue hasn't bled and is painful.
She also made vaguely positive noises when I told her I have what might be lichen planus elsewhere on my body.
Really glad to arrive here to chat with people who've been where I suddenly find myself now.
Looking through some of the posts, I can already see people in my exact position and it makes me feel less neurotic.
I can't decide whether this thing being on my tongue makes it better or worse. After all, I can SEE it. I'm looking at this thing and wondering if it's cancer.
I'm just still at the point where I'm tearing up at the thought of having to leave my boys behind. This can't happen.
Tomorrow, they're coming to stay for the weekend, so I need to pull myself together. Thought I'd come on here and also allow myself one day of worry and self-indulgent comfort food, ha!
Wine may also be involved.
If my situation once applied to you, or still does apply to you, how do/did you feel?
And did anyone decide to go private, to speed up the biopsy? If so, did it actually speed anything up, in your experience?
Right... I think that's more than long enough for a first post. Thanks for reading. :) :( :) :(
Thanks Nige!
Yes, whatever works. At one point, I remembered a horror film involving someone being buried and had to forcibly eject that from my mind!
Yes, the results. Have been told June 5 or a bit after for those. Feels like the odds are in my favour, but am terrified by the idea of the consultant telling me, "I'm afraid it's the worst news"
Well done, SBG. You're on the road now and hopefully you'll keep us travelling along with you.
Gill xx
That’s a normal thought and reaction - I felt the same, in my case my wife is an amazingly positive person and takes the opposite view so balances me.
I think we’ve both said before, to think of the positive would mean a huge drop if it was not so positive.
But there again, revel in your achievements of this week - you’ve done your bit, nothing you do or think can change the results, deal with them at the next appt and you’ll have that amazing hospital team there to help you , plus us all routing for you.
Before you know it - you’ll be on your treatment and fighting it all the way !

Reflecting over this week, I'm thinking of the lovely hospital staff I've met.
All of whom were friendly, while having to draw the line between being too chatty and getting their job done.
The one negative element, however, was that none of them were wearing a mask when I showed up.
While not unexpected in this current phase, it still came as a surprise.
Not to mention an added source of stress, when I had to ask each of them to pop on a mask to protect me.
Why am I saying this here?
For the avoidance of doubt, it's certainly not to prompt discussion of masks or where we are with COVID-19.
I'm sure we've all had enough of such discussions to last a lifetime.
So I'm saying this to reassure anyone who wishes that staff would wear masks to protect them, but doesn't feel able to ask for whatever reason.
My experience this week was that, when you ask, they will wear a mask.
In my opinion, vulnerable folk in particular shouldn't have to ask.
But if you do, they will.
The odd person looked a shade taken aback this week, sure, but they wore a mask.
So that's worth knowing.
Thank you Nige! I am indeed taking time this weekend to rest, recuperate and feel kinda pleased with myself for having faced the fear this week.
Oh, the psychological torment of appointments and appointment changes.
yesterday, my results appointment was set for June 11 - and I was complaining to friends about having to wait 2 weeks to find out what's happening.
This morning, they called to offer me an appointment in TWO DAYS (Saturday) instead, which has now put the fear of God into me.
The booking line guy claimed my results were due to arrive in the next 24 hours... but of course he'd hardly tell me if they were already in, and that this appointment change is based on that.
I couldn't do the Saturday appointment, because my boys will be here. So it's now next Wednesday, June 4...
Really scared, to be honest.
Doesn't help that my consultant's bedside manner leaves a lot to be desired.
Hi there SBG.
Apart from the obvious, hopefully you're coping.
It's natural but try not to scare yourself. At least you don't have to wait as long as you thought. If the news was drastic or super urgent, they might have phoned you? I don't know how hospital admin operates but I got a phone call from a consultant in the early days about H, not a face to face, and was told there and then how the land lied.
Calm yourself, if you can, and look forward to the weekend with the boys as I'm sure they'll provide a welcome distraction.
All good luck to you.
Gill xx
Thanks Gill.
I've been coping quite well the past few days, especially as I found out about frictional keratosis, which fits my symptoms very well.
Today, though, i'm feeling very stressed and finding it hard to be fully present for my kids.
Wow, so you got a call. Must've been such a bombshell?
Maybe some consultants make calls like that, while others prefer face to face?
One thing's for certain - if all is well, I'd certainly rather get a call ASAP
Hi again.
It wasn't really a bombshell as I was fully geared up for the news and remained steely calm on the blower...then bawled my eyes out when I put the phone down!
Yes, the call was better because I got the news, digested it and then pulled myself together after the snivelling session.
I felt really sorry for my H as at that time his head was all over the place and I was unsure what he'd been told. He was present when I got the call, but not sure how much he'd taken in. He wasn't able to ask questions himself so I did. My first was, what's the prognosis? I wouldn't be surprised if she thought what a cold-hearted cow I was but that's how I deal with bad news. Inside, I was crumbling.
Which brings me to your consultant's bedside manner.
I'd embrace a brusque report tbh, as soothing sounds make me cry. That's me, I'm afraid.
Take care,
Gill xx
From reading other posts and having caring for two family members with health problems short notice cancellations and filling the gaps appears to be the norm so try and not to worry. Best wishes for next Wednesday
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