Newbie……again.

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Well, here’s a group I wasn’t expecting to be in. But then who of us does?

Clawed my way through Triple Negative breast cancer, roughly 12 years ago. Found to be BRCA1, so the other boob was removed, plus ovaries, and anything else in the way Flushed.

Been through Gynae cancer, with hysterectomy. I’ve been checked and checked with Guys….theyve looked everywhere for a possible reason for slightly raised tumour markers, and after a PET scan……there it was……a neck lesion.

Which brings me here.

It’s in the saliva gland. Feels like a marble just under my ear. I’ve been ignoring it for over a year, as I’d put it down to being a cyst. Silly me.

So my consultant appointment, still at Guys, different department, is on Wednesday, where I expect they’ll do a biopsy, and take it from there, although from what I understand, it’ll be removed, whatever the content. 

Would love to connect. This is an area I know nothing of, neck of all places…..

  • Hi, squaredog welcome to the group none of us wanted to join. However now we are here, we all try to help each other when we can, any questions you have just ask away, someone will always answer if they can.

    Ray

  • FormerMember
    FormerMember

    Hi Squaredog

    You should know a lot more when your biopsy is done, they had a couple of goes at my tonsil and neck before I was given results, HPV16 plus Tonsil cancer which required Chemoradio.... keep the forum updated with your progress, always someone around to support you and help with up to date advice 

    Peter 

  • Hi and welcome from me.  As you get to know more about what is going on be sure to shout when you need help or advice.  Other than that we don't bite on here - it is really friendly and supportive group.

    Peter
    See my profile for more details of my convoluted journey
  • I've only been on here for about 6 weeks but these guys on here are incredible  they are helping me greatly and they will help you too. They have become part of my family.

    All any questions no matter how trivial we're all here to help one another

    Best wishes

  • Welcome from me yes sadly none of us wanted to join but here we are. When you know more we can try to answer   Mine was lymph  nodes  with primary in tonsil hpv driven  head and neck cancers usually have a good outcome. What a shock to your system discovering another after all this time yes many of us ignore lumps   I now know anything that’s been therev3 weeks or so to get checked  I had my lymph node for at least 3 months before I did anything  

    hugs 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hello and welcome Squaredog

    I was treated at Guy's, you're in good hands there. 

    Wishing you luck - let us know how you get on? 

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story