Neck Cream PLEASE

John my radiologist gave me Polymem  bandages and they were brilliant and really helped with the blisters etc. speak to your Radiologist or doctor as they are new but excellent.

regards 

Dave 

I’ll second Polymem

Dave

Many thanks with contact my Radiologists tomorrow re Polymem

John

Hi Dave

When you say ‘just’ finished your treatment, I’m guessing it’s within the last week or two?  I wouldn’t panic.  I was tube dependent for at least 6 weeks after treatment.  My main issue with liquids was that instead of going down, they wanted to go up behind my nose which was highly unpleasant.  Water was one of the worst offenders….it took me a long time to be able to drink it.  My go to when I first started being able to drink was cappuccino.  Counter intuitively I found larger gulps were easier than small sips.  

Maybe have a chat to your speech and language person?  Mine gave me some thickener (tasteless) to make swallowing water easier. You can achieve any consistency from just a bit thicker than water to something more akin to wallpaper paste.  Sounds ghastly but it helped.

Good luck

Liz

Hi Dave

My experience was similar to yours and Liz's.  I worked with my speech therapist and daily mouth and swallowing exercises really helped!  It also helped having a swallow test to see how things went down when I swallowed.  It took maybe 4 months to transition to full oral eating and being able to stabilize my weight to feel comfortable having the PEG removed. It takes time and perseverance.  Hang in there and YAY cappuccinos!

Hi I burnt and was  using polymem bandages in week 5 they really do work. Trick is to leave them in until green gunk comes through to the outside  sleep in them only take off for shower. 

hazel