Hello - waiting for hospital appointment

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Hi

I have had a very sore throat and difficulty in speaking since 22nd October 24.  39 days.  I've had 2 courses of antibiotics and no improvement.  My throat is so sore and I can barely speak.

I've now had an urgent referral to the hospital.  When the referral was made I could see the computer screen in the Doctor's office and the word 'cancer' was on the form in several places.

My hospital appointment came through yesterday - it's in 12 days.

I'm OK but I keep getting big waves of anxiety that come and go.  I'm doing my best to trust the process, I know I am in good hands, it's not easy though

Does anyone have any tips about how to cope with the waiting.  

Thank you so much for reading this and thank you in anticipation for any responses

Trish 

  • Hi Trish. 
    First, the cancer pathway is the standard two week urgent referral. 
    90% are not cancer. 
    If you do have oral cancer most of it is caused by HPV virus and the treatment, though tough, has a 95% cure rate

    Right that’s the stat stuff out of the way

    All you can do is keep busy with the things you enjoy. Get some fresh air. Don’t look for answers on Google. 
    if you aren’t sleeping see if your GP can give you something to help. 
    Take somebody in with you for your appointment and don’t leave till you understand everything that’s said. 
    If you need us stay with us. There’s lots of help here. 
    This waiting is one if the worst times. It passes. 
    Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Like you I am awaiting results and hospital appointment. Jaw and tongue and have worrying symptoms.  My mind is in overdrive, and just don’t know how to handle it all.  I am over anxious and play scenarios in my head Pensive 

    Kos

  • When is your appointment  ? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Had biopsy 9 days ago so waiting and had scan so that’s where I’m at. 

  • Hi Trish we’ve all fern there Dani’s advise is what got us all through. Dr google is your worst enemy watch tv read anything to distract. I watched all seasons of game if thrones no idea what it was about but kept my mind off it. Hpv oral cancers are in the increase mine was 6 years ago aged 61 now living a great life. 
    if you’re unlucky enough to join us we will all help. 

    hugs 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Wow - thank you so much Dani 

    I didn't know that stat stuff, so helpful 

    And thank you for the tips 

    It's absolutely wonderful to have this space/resource/support to come to 

  • I'm so sorry to hear that you are struggling with anxiety and playing it through in your mind 

    I hear you 

  • Can’t believe it’s happening, just getting on with my life and wham!!!

    1. Thank you for the hugs and tips Hazel Pray

    I'm still in bed Sweat smile I think I will get up and take the dogs out for some fresh air and then enjoy the opportunity for some guilt free binge watching Relaxed️

  • Gosh, same - did you see Dani's reply with the stats?  I have found that very reassuring, it's still hard though 

    I'm going to log off now and go and get some fresh air.  Keep in touch on the forum and let us know how you are getting on 

    Thank you very much for sharing your experience, it means a lot