T3N0M0 Laryngeal Cancer

Thank you Peter

Hi Sunshine 

Side effects vary from patient to patient, some do get off relatively lightly, others not so, make sure he has plenty of effective pain meds and anti-emetics for weekends and bank holidays.

Peter 

Hi Sunshine...

Sorry original post deleted in error...please keep the forum updated with your partner's progress....plenty of sound advice and support from others who have gone through /are going through similar treatments.

Take care

Peter

yes, if things go pear shaped, it usually starts at the weekend..

Hi Sunshine, I have had your husband’s cancer mine was in my voicebox so had a Laryngectomy (removal of box) and a neck breather so more dramatic than your husband’s treatment but I had no follow-up treatment. I do however meet people in the Hospital with RT and Chemo treatment, I’m afraid I can’t ease his or your concerns as he will be in quite a lot of discomfort and swallowing will become more and more difficult if he can swallow at all he will be on soft foods and high calorie shakes- they will be prescribed by the Dieticians, he will be hopefully well supported.

It's a rough journey but I am 4 years from that cancer and 2 yrs remission from my second cancer Oesophagus which I had RT and Chemo for

Can I suggest also may be too late now but please don’t use Dr Google it will give you dreadful results try all cancer specific sites such as ours and also Cancer Research have good info pages, a good source of support is also Swallows a charity specific for Throat and Mouth Cancers :

 https://theswallows.org.uk/

Hope this helps, take care both of you

Tony

Hello, my partner is now 9 weeks post chemoradiotherapy and is doing really well, eating and drinking fine and his voice is back to near normal! 

He has signed up to do a trial, it is called the phase 3 Evolve trial. (It is an immunotherapy trial, I believe to help prevent a recurrence) I just wondered if anybody else was offered this? 
Thanks 

Sunshine38 said:

He has signed up to do a trial, it is called the phase 3 Evolve trial. (It is an immunotherapy trial, I believe to help prevent a recurrence) I just wondered if anybody else was offered this? 

Hi Sunshine. Good to hear your partner is doing well.

Volrustomig is the checkpoint inhibitor on trial. I haven't heard anybody else being offered it on this forum but there may be somebody. 

Do let us know how he gets on and fingers crossed

Hello, thank you. Like everything the trial does have side effects! He can pull out at anytime as it is not his treatment! He will be watched very closely even if he gets put on the arm where he is just being watched and not actually having the infusion as it is a randomised trial with 2 arms. I am happy about the amount he will be being watched. I just wondered if anyone else has been offered or done it so I can learn a bit more about it. Thank you 

Great to read that your partner is doing so well.... good luck with the trial....

Keep the forum updated.... others will be very interested in the results and any issues.

Peter