Hello

Hi Ultraman. Welcome to our small community. The waiting and fear of the unknown is the worse part. Hopefully with the cancer being found early you may not need radiotherapy. Remember head and neck cancers do  have a very good cure rate especially when found early. 
Cancer treatments are increasingly getter better results and please dont compare  your husbands ex wife’s cancer to yours. Am sure he will be a great help to you.  
there’s lots of us in here living a great life. I’m 6 years post treatment and happily living a great life. 
please keep busy and fingers x you don’t need to wait too long for treatment plan. 
if you do need radiotherapy there’s lots of us on here to help. 

Hazel xx

Hi Raz

Thank you very much. I didn't know where to turn to and who to talk to but I think I found a right place.  

Ultraman

Hi you’re welcome. It’s fear  if the unknown. We all understand I was in a similar place may 2018. My world fell apart but here I am 6 years further on.

if you type in search bar tongue cancer you’ll get more results. 
there’s also a f/b group we can’t put link on here if you’re under 60 you can join. 
look for young tongues it might help as well. 

hazel 

Thanks for the additional information. I will have a look.

Great connecting with you.

Takako aka Ultraman

RadioactiveRaz said:

there’s also a f/b group we can’t put link on here

 Ultraman 

Yes we can. It’s 

https://www.youngtonguesglobal.com/

Thanks Dani didn’t think we could use it I’ll book mark it 

Hazel 

RadioactiveRaz said:

Thanks Dani didn’t think we could use it I’ll book mark it 

You cannot link FB or X but you can linK a charity. I usually add that YT have an active FB group which you can find find on their home page 

Just to update my situation after my first post. I had various scans and they came back all clear but since I had lots of dental treatment, MRI scan around my mouth was not very clear. I am due to have oral Ultrasound next Monday. I was told that my tongue cancer is stage 1.  Depends on the ultrasound result, we will decide whether to just have excision of the area or excision plus remove some of lympha nodes. If I don't need to remove the lympha nodes, then I was told to have scan on my neck every 3 months.

I am trying not to think about what is going to happen but found very difficult. I am so so scared  .

Takako aka Ultraman 

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