Hi, carer for partner

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Hello, My partner is 2 weeks into radio therapy and the side effects are kicking in! Tough weekend.

  • Hi Sadie. Welcome here. 
    Yes two weeks us when things start ticking. Tell us a bit more if you feel you can. There’s lots of people here ready to help you. 
    I had six weeks of RT and I’m over five years clear now. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Sadie,

    So sorry to hear that your partner is two weeks in to what can only be described as brutal treatment …. like Dani said many of us have been through it and still here enjoying life.

    Im 6mths post treatment was T4b HPV+ plus spread to base of tongue and several lymph nodes , now one of the 90% who are cured of their cancer x

    We know how hard this is for patients and their loved ones.

    Stick with us , this group of people are amazing and will do their best to support you and your partner.

    Big hug 

    Debbie

  • Hi Sadie 

    Weekends are always the dodgiest of times....... not much in the way of available support ....same with bank holidays, make sure you have plenty of pain meds to cover these periods.

    I had six weeks of Chemoradio last year for HPV 16+ Tonsil cancer....after week 3 the tough times really kicked in....hard going for patients and carers.... but things will improve.

    Stick with this forum.....lots of good people and sound advice.... avoid Google unless it's for NHS, Macmillan etc.

    Take care and best of luck 

    Peter 

  • Hi Sadie

    Welcome to the forum. Sorry to hear about your partner's diagnosis. It is hard for you as the support person as well as for your partner. Seeing someone you love going through pain and not being able to do anything about it is difficult. Your partner will be really appreciative of your support at this time. The side effects are rough but the end game is worth it. Make sure that your partner takes his pain meds by the book as this can be a real life saver. It is hard to lose track of when they are due so I used to write down when I had taken them and when the next ones were due. Constipation can become an issue when taking morphine so make sure there is plenty of Movicol in the house and get your partner to take it regularly.

    Most people on the forum have had radiotherapy so lots of experience and support here.

    Sending hugs

    Lyn

    Sophie66

  • Hi Sadie,  my husband has just finished his radiotherapy treatment 25 sessions. It's been a hard slog for him , and so difficult to watch him in pain and suffering. He focused on ringing the bell at the end of it all . Daily focus on maintaining his calories, swallowing and chewing, he was given tongue exercises too and lots of rest/naps. Be sure to not hold back when you see the oncologist, ask for stronger pain relief. My husband was given gelclair and caphosol, plus the oral spray , which all helped at weeks 2 and 3. What side effects is your husband experiencing? 

  • Thanks everyone, good to meet you and hear about the light at the end of the tunnel x

  • Hi it’s tough but take it one day at a time and the light at the end of the tunnel will be there I was 6 a when diagnosed now 6 years almost out if treatment 2 weeks is par for the course for side effects to kick in wish I could say it gets easier but it doesn’t. Just plod on. 
    Lost if us in here are proof that’s it’s works  

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • At the moment it's mainly swallowing that's hard. His saliva is really thick too so he keeps having to cough that up. He's super tired but I don't think not getting enough food is helping x

  • I don't think not getting enough food is helping x

    Does he have a feeding tube ? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • He has a peg tube, we just started using it for fortisip today - yum! He's still trying to eat though so I'm having to come up with soft recipes. Just finished making tapioca pudding Laughing