Dad recently diagnosed

Welcome EJSH to our community, but really sorry you are here.

You’re Dad certainly is going through the mill, as I’m sure you and the rest of your family are. Cancer doesn’t just affect the sufferer but all who care about them too.

I was my husbands carer, you can see our journey if you click on my name. My husband had tongue, tonsil and lymph cancer and underwent gruelling treatment but came through it. It was hard but we came through it.

I have little to no knowledge of jaw cancer but wanted to say hi. I’m sure somebody with more experience will pick this up shortly.

Stay here with us, there’s lots of caring people on this forum, who will give you as much support as they can. 

Hugs and strength

Debbie xx

Hello EJSH and welcome from me, too.

Like Debs, I'm my fella's carer and although he had a different cancer to your dad's, he did indeed lose his voice.  You can read our story too, by clicking on my name as sometimes, a salient part of others' journey's could be of help.  We have a member here, Sophie66, who had a cancer very similar to your dad's, but as she lives in Australia, she usually posts much later in the day.  Her story may possibly provide greater insight into what to expect for your dad's treatment.

We totally understand your feelings at this time, but there's plenty of support here for whenever you need it so don't hesitate to call in.  

Wishing you and your family all the best for your dad and the upcoming wedding; I'm sure he'll be looking forward to it.

Hugs and strength xxx

My heart goes out to you.  It’s really hard to have to watch someone you love going through a really rough time.  I know my diagnosis and treatment hit my husband a lot harder than it did me.

Im no medic, and am the first to admit I know nothing about jaw or pancreatic cancer….but my instinct was the same as yours with respect to investigating the pancreatic issue.  I think I would want to know exactly what he is dealing with, and have decisions about treatment addressed in the round.  It’s good that this will be looked at by the MDT.

It’s good he is having a feeding tube fitted.  I know that even that is scary, (I know I resisted the suggestion at first) but even with the far less extensive treatment I had, I would not have survived without it.  

Sending best wishes to your Dad, and to you for your wedding.  Stay with us. We’re here to listen and support if we can.

Liz

Hi Ejsh. So sorry to hear about your father's diagnosis. He is so lucky to have you as a support person. I had jaw cancer which was caught early so my outcome has been good. Over time I have had 3 ops (2013,2019,2022) as I had new occurrences. I have had a mandibulectomy and 2 maxillectomies and 2 lots of radiotherapy over time.  It is a tough journey and takes a while to adapt to your 'new normal' but you do get there. I am living a happy life and am involved in lots of different activities now. Still go on holidays and enjoy volunteering at the library amongst other things. I wish your father all the best for his op. Unfortunately it is a marathon and not a sprint so may take him a while to recover so he must give it time. 

Lyn

Hello EJSH,

Sorry to hear about your dad's recent cancer diagnosis.  Six weeks ago I had surgery to remove oral cancer that had spread to my left lower jaw. As well as the manbulectomy I also had six teeth removed and had a bone graft from my right fibula and a neck dissection. I spent 3 weeks in hospital and am now recovering at home. My husband and daughters have also been on this crazy emotional rollercoster with me - cancer affects the whole family. I understand how daunting it all sounds but this is a great online community where you'll find plenty of support from people who can empathise having gone through similar experiences.