Neck cancer

  • 8 replies
  • 134 subscribers
  • 285 views

Hello everyone, I'm new to this and would like some help please. I was recently told that I have cancer in my neck after discovering a small bean size lump below my right ear, this has now grown into a hard mass and has now moved to the front of my neck (thankfully not stopping me eating, breathing etc) after ultrasound, MRI, CT scan and then a biopsy I was told it was 5.2cm. I was also told that I have a 1cm node on my right lung, I'm terrified but I have an appointment with the lung clinic on Tuesday and I don't know what to expect, would anyone have any advice please.

  • Hi  

    Sorry to hear your news 

    Do you have biopsy results? Do you know what they are? 
    The lung consultant may want to biopsy the lung lesion. I’m sure they will give you plenty of time to explain things. Can you take somebody in with you to hear what you don’t? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Allipally

    Just wanted to say ‘Welcome ‘to the group.

    As Dani said please see if someone can go with you and take notes on what is being said ( plus ask any question's you may have).

    My head  used to turn into cotton wool(  my husbands too ) . If no one can accompany you there maybe a nurse (if one is in the room )or maybe the consultant could write you a summary .

    Best hopes for your appointment .

    Debbie

  • Thank you for your reply and suggestion,  my husband will be with me and he's great at absorbing information so he'll be a huge help. It's reassuring to read yours and danis suggestions and hopefully things will go well. Thank you again.

  • Thank you for your response, it's very helpful and I'll certainly get my husband to listen carefully because I know it'll all go over my head and I'll hear all the bad things. Thank you again.

  • Good luck. Let us know how you get on if you feel up to it xxx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi a welcome from me.  Ask if you can record the meeting or take a pen and notebook. I used to type 2 lists of questions one for me one for consultant, that way I could write the answers down and he could see in writing. Otherwise my head turned to mush.stick wit( us were always happy to help

    hugs Hazel  

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • I actually went a little further during my second diagnosis, I recorded all my appointments on my phone; obviously you'd need to get the OK from the medics involved, but they were quite happy for me to do it Was during covid so I was alone at the appts, proved very useful.

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Thank you, that's great advice, I'll take my husband along and a notepad and pen. Many thanks again, all advice is gratefully received.