Hello everyone, I'm new to this and would like some help please. I was recently told that I have cancer in my neck after discovering a small bean size lump below my right ear, this has now grown into a hard mass and has now moved to the front of my neck (thankfully not stopping me eating, breathing etc) after ultrasound, MRI, CT scan and then a biopsy I was told it was 5.2cm. I was also told that I have a 1cm node on my right lung, I'm terrified but I have an appointment with the lung clinic on Tuesday and I don't know what to expect, would anyone have any advice please.
Hi Allipally
Sorry to hear your news
Do you have biopsy results? Do you know what they are?
The lung consultant may want to biopsy the lung lesion. I’m sure they will give you plenty of time to explain things. Can you take somebody in with you to hear what you don’t?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Allipally
Just wanted to say ‘Welcome ‘to the group.
As Dani said please see if someone can go with you and take notes on what is being said ( plus ask any question's you may have).
My head used to turn into cotton wool( my husbands too ) . If no one can accompany you there maybe a nurse (if one is in the room )or maybe the consultant could write you a summary .
Best hopes for your appointment .
Debbie
Thank you for your reply and suggestion, my husband will be with me and he's great at absorbing information so he'll be a huge help. It's reassuring to read yours and danis suggestions and hopefully things will go well. Thank you again.
Good luck. Let us know how you get on if you feel up to it xxx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi a welcome from me. Ask if you can record the meeting or take a pen and notebook. I used to type 2 lists of questions one for me one for consultant, that way I could write the answers down and he could see in writing. Otherwise my head turned to mush.stick wit( us were always happy to help
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I actually went a little further during my second diagnosis, I recorded all my appointments on my phone; obviously you'd need to get the OK from the medics involved, but they were quite happy for me to do it Was during covid so I was alone at the appts, proved very useful.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Thank you, that's great advice, I'll take my husband along and a notepad and pen. Many thanks again, all advice is gratefully received.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007