Hi
New here - I’ve joined the online community because my hubby who had oropharyngeal cancer 10 years ago and h beat it, has recently been diagnosed with a new neck cancer with a secondary lung cancer in the mediastinum.
Following all the RT on the tonsil area all those years ago, there was such significant damage to his salivary ducts and tongue, that it wasn’t unusual for him to choke on food, regurgitate and have a phlegmy cough often. That’s why we didn’t realise that something else was going on recently. After back to back chest infections, a chest X-ray led to a CT scan which led to EBUS biopsy and that confirmed a squamous cell cancer tumour (same as before). They phoned two weeks ago with that news and scheduled a neck MRI for previous cancer site, and a PET scan. Just got the news over telephone that PET scan shows a primary tumour in the neck near the old cancer site.
We’re still awaiting an appointment with the consultant to talk about what stage we’re at and whether or not it’s incurable but I wanted to join this community this time (I didn’t last time so it’s a bit new to me) - I feel like the support of being amongst others who might be living with these things day to day might help.
I’m very worried about him as he’s visibly deteriorating daily - the latest issue is an intensifying nerve pain in his right arm on the side of the neck tumour. Three days ago he was running about at work as a restaurant manager, and within the past couple of days he’s been grey and dosed up on the strongest painkillers I could buy - it’s
Anyone got any ways of helping with this arm pain thing?
Thanks for listening! So many questions at this stage!
Hi spanny so sorry to hear your husbands cancer has come back. I would get back to his team regarding the arm pain to start with.
I guess you're looking at immunotherapy, maybe, and his hospital might be able to provide it but I do know the Royal Marsden has a special centre for head and neck cancer recurrence and they are running trials on novel therapies. It would definitely be worth getting a referral there https://www.royalmarsden.nhs.uk/IReC#:~:text=World%2Dfirst%20centre,recurrent%20head%20and%20neck%20cancers.
Good luck
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you for your kind comments - I only just figured out how to reply! 
The MDT meets tomorrow to discuss and I hope we’ll be allocated to a consultant shortly after that.
