Surreal…..what the hell

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No idea what is happening to my world……..recently retired and looking forward to living.

Cancer confirmed, lump in lymph node in neck, thought to be the secondary, further biopsy take on Tuesday from tonsils/base of tongue for what is thought to be the primary.  
Stage and treatment plan expected on Tuesday, along with booking oncology appt.

I’m spinning, live alone with my crazy dog ie a Vizsla, resting isn’t something I do……still running, walking, 10k event on Sunday, it’s the only time my head feels free from this nightmare.  I’m still planning on going skiing on 3rd March with a gang of friends, all the medical staff suggest this is a good idea.  Any thoughts?  I’m taking the view that it’s business as usual until it can’t be and feel it’s more important than ever to go and have a fabulous time (there’s only one of the group of 8 that knows, really don’t want people treating me any differently)

Sorry I’m rambling, seem to be doing a lot of that!!  Reading your stories with interest and only sorry to be making new friends under these circumstances.  Hoping for support and words of wisdom from the unfortunate experts…….life just got seriously weird!!

  • Hi  welcome but sorry to see you here. 
    Waiting for results is the pits. So do what you want. I’d certainly go with your mates. Then come back and put your head down and get on with it 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • My thoughts too Dani, thank you, appreciate that Thumbsup tone1

  • Come back to us when you need a little help along the way. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Cake Lover

    So sorry to hear about the cancer diagnosis. It is always a shock to receive this news especially when in every other way you are fit and healthy.

    Definitely keep doing what you normally do as it sounds as though you really love running. When I was waiting for results of my tests in 2019 I decided to continue with a planned road trip with my husband. I did not want to wait around waiting on results which I was fairly sure would turn out to be cancer. It was my last opportunity for a normal holiday knowing that the op I would be having would be a life changer. (Not the op you will be having) However I got through the op and radiotherapy and am still going strong and enjoying life.

    You will get through this too and will get the chance to enjoy your retirement although it might be delayed for a while.

    Sending you my best wishes for a great holiday.

    Lyn

    Sophie66

  • Hi yiure in teh same position I was 6 years this coming May. I had just cycled 1100 km in Spain hubby recently retired and our world fell apart with my diagnosis. But I’m still here 5.5 years post treatment back on my bike living a great life. Blog below might help any questions ask one of us will always help 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Hello Cake Lover, and welcome to this lovely forum - they really helped me through. 

    Definitely have your holiday and enjoy activities for as long as you can.  I kept up swimming through my treatment, though it was just a cold dip by the end. I'm back in good health now. I well remember what a horribly anxious time it was waiting for full diagnosis and treatment.  Good luck!  Take it one day at a time and hopefully it will all be a distant memory before too long

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022.  Dec 2023 one year all clear. See my profile for longer story

  • Hi Cake Lover

    So sorry to hear about your recent diagnosis Im glad you managed to find your way to this wonderful group, like Catriona and many others on here I couldn't have made it through without the amazing support I recieved ( and continues to this day).

    This is for ,most of us the hardest time …the fear of the unknown and anxiety are all consuming… so keeping your routines ,hobbies, fitness regime will all help . Keep that brain busy busy busy and stay off GOOGLE.

    Going skiing with your friends will be just what you need , enjoying every moment  and eat lots of delicious foods.

    I was diagnosed last August with T4a( right tonsil) and spread to three lymph nodes in neck .Im 12 weeks post treatment and the one thing Ive learnt is everyones treatment and recovery is as unique as we are. I found reading Hazel and Danis blogs very helpful as I wanted an idea of what to expect ..knowing they and others on this site are 5yrs +cancer free and enjoying life is inspirational.

    The treatment is tough but you will feel better once it starts …you will make it through x

    Enjoy the snow and being with your friends

    Debbie x

  • Sorry to hear this. One thing to add to all the good advice in here is keep up the exercise for as long as you can. It really helps with the recovery process as well as mental well-being. I was 63 and carried on running and cycling up until my second week of chemoradiation, when my body basically told me stop. Then I went for at least an hour’s walk every day during and after treatment even if I didn’t feel like it. I started running again about three months after it ended. It’s important. Wishing you all the best, M 

  • Hi Cake Lover

    I was diagnosed with T2N1M0 HPV+ tonsil cancer in Feb 2023 ....nearly 2 years after the problem first surfaced...then things did go pear shaped.

    ''business as usual until it can’t be''  is a great philosophy.... go for it and enjoy what you can until your treatment kicks in.....

    Best of Luck

    Peter.

  • Welcome from me Cake Lover, sorry you have found yourself here, but it's a good forum Tina x