Is this the right place re my Tongue Biopsy?

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Hello all, 

A bit confused but hopefully in the right place???? I have had an MRI, Ultrasound and am due a tongue biopsy under GA on the 14th Feb ( Happy Valentines to me). Already I have been so inspired by people's journeys and the sharing of knowledge. I am petrified and yet feel totally supported already from this site.

I am a totally positive person for the most part but would be lying if I said I did not have many moments of complete and utter fear. 

We have just sold our house and have bought a house in Ireland ( long term dream) and this timing is a complete bummer!!! I like to keep imagining that the biopsy will show that everything is ok but...Why should I get away with a clean bill of health? Who do I think  am? But it helps me to be positive.

I will have so many questions once the biopsy results are in. I do promise that I will update either way. So far , MRI shows nothing in Lymphs. Ultrasound shows saliva glands are clear . THe camera up and down my nose/throat shows a lesion on the base of my tongue. Something was mentioned about lingual tonsils but my husband , Nick, who was there to take notes got distracted ( by not paying any attention) so I am not clear on what they said. 

I am 56 ( birthday today). Have had a rough ride in the last few years ( family bereavement) but generally in good health. 

You all amazing and I feel like I may well be in good company.

  • Something was mentioned about lingual tonsils but my husband , Nick, who was there to take notes got distracted ( by not paying any attention) so I am not clear on what they said. 

    Hi Lozza

    welcome but sorry to see you here. 
    yes you heard right. There is tonsil tissue at the back of the tongue as well as the pharynx. It’s where my cancer was. 
    Stay with us and we will help you both through it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • thank you. Your blog  is one of the many that I have been looking at. The fact that you and others are still offering support, despite the fact that you , by rights , are entitled to be enjoying your recovery without reminders , is so kind. .

    Lorraine x

  • Hi Lozza. I would say happy birthday, but reckon your heads s shed j know mjnd ass. Honestly this parts the worst part the waiting the rest of the unknown. Yes base if the tongue is lingual tonsil mine was the tonsils you can see. Has HPV been mentioned ? Stick with us in over 5 years  and happily spending part of our retirement in Spain living our dream. 
    any questions shout out keep iff google you’ll scare you’re self more. 

    I’m a positive person little Miss glass half full but wobbles happen 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Hi Lozza123

    So sorry to read your post and I know what its like as my 56th birthday came during second week of my treatment … but still all the best for today xx

    Ive had a pretty rough journey to date(Im 10 weeks after last radiotherapy) but my most fearful time was where you are right now ….the not knowing all the details…. the fear of the unknown …sadly we have all been there and have the t-shirt x

    As Hazel said stay away from google , try and keep your brain busy with other things , do the things you love/enjoy eat some lovely meals spend your time with friends and family .

    I found once treatment started it felt better for me and I hope it will be the same for you x

    x On this group there is never a daft question,someone  happy to hear your fears, always find a friendly listening ear …

    Thinking of you

    Debbie

  • Thank you Hazel. Love your blog. Really helping me focus and prepare. I am going to ask the staff at the hospital to give as much info as possible on the day of my biopsy. It is terrible just waiting but I am keeping busy . I know so many have gone through it but it all is so frightening. My husband and siblings are aware but keeping it from our grown up children for now.

    Lorraine

  • Hi Debbie, I will keep off google from now ( according to the info on there it is a miracle I am still here!!)

    There are so many practical things for me to sort out if the diagnosis is not good - we are moving to Ireland within the next 8-12weeks. Not sure how to factor that in. I am taking one stage at time.

    Lorraine x

  • Hi Lorraine. Thank you for kind words re blog. I did it had it was the only thing I had a modicum of control over. Now like Dani’s it helps  others. Ask any questions in here we’re all happy to help. 
    the waiting’s the worst part honestly. Once you’ve told the older children it will be less pressure on you as well. They will be resilient it’s surprising how much they will be. 
    hugs Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • thank you. Your blog  is one of the many that I have been looking at. The fact that you and others are still offering support, despite the fact that you , by rights , are entitled to be enjoying your recovery without reminders , is so kind. .

    That’s equally kind of you Lorraine to say that. I have been in a caring profession all my working life. This was an  almost seamless extension. I say almost. I had to get cancer to be here. But I got a lot of support from others here and gained much that I didn’t learn from hospital. It’s only fair that I give something back. Peer support is worth ten pats on your back from your oncologist any day. 
    best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hello again, I am wondering what to expect from the biopsy, in terms of recovery period? I cannot see the bump on my tongue so it must be right at the very bottom. I am not sure whether I should alter some plans that I have. I am due to go on a trip to London with some girlfriends on the 22nd Feb(a week after the biopsy)We have tickets for the Mamma Mia experience. We will be going by Train from Bradford and staying overnight. It will be full on for 2 days. In all honesty I don't really think I will be in the mood ( unless I get a miraculous and V quick clear result) but I don't want to let them down or let know the situation but I might have to tell them I guess :.   

    Lorraine x

  • Lorraine. You might be a bit sore for a couple of days. I had a panendoscopy looking at the base of my tongue and everywhere else. Paracetamol took care of the pain though I was pretty out of it from the anaesthetic the night I got home. 
    My tongue was bruised at each side where I presume it had been clamped with some sort of retractor. 
    I'm sure you will be fine physically a week afterwards and it might do you the world of good to go. BUT this is a time to concentrate on yourself so you mustn’t feel guilty not going if you decide not to. 
    I went away for two nights between biopsy and result. Husband and I did a honey fair in Wales. Looking at the pictures I do look a little bleak but I’m glad I went. 
    Sorry that’s not much help. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge