Good afternoon. Looking for a bit of advice please.

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Good afternoon. I recently was diagnosed with a sinus tumour and little bit in lymph node. It does have a name yet no idea how to spell it, nasal something! I'm starting chemotherapy and radiotherapy on the 13th November yet I'm really struggling with tiredness already. Is this normal and any ideas what I can do as I understand the treatment will make me tired just I'm absolutely knackered now?

Many thanks for any idea's and I hope you are all ok. 

Many thanks. Rich 

  • Hi Rich sorry you’ve found yourself con here. Could it be nasopharyngeal cancer ? Tiredness isn’t unusual so try not ti worry easy to  say hard ti do. I know from my treatment how hard it is. Once treatment starts everything falls into place. I made a friend during my treatment ye had nasopharyngeal cancer he’s just passed his 5 years like me. Any questions were all happy to help 

    One day at a time keep off  dr google as well

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Thanks so much Hazel. Yes it's nasopharyngeal and adjacent lymph node. I'm definitely staying away from Google.

    It's just hard being so bloomin tired to the point of feeling lazy yet it really isn't. I'm going to speak to the horizon centre next week and hopefully will get some tips to give me a kick up the bum!

    Thanks again for your help and have a great weekend.

    Rich

  • Hi Rich. You’re not being lazy if you think about it you’ve got a cancer inside a sensitive part of your body it’s bound to take  its toll. I vividly recall doing a 3 hour walk prior to diagnosis then went to bed in the afternoon fir 3 hours   Little did I know I was carrying a cancer and eventually 7 lymph nodes. So what I’m trying to say is be kind  to yourself. Listen to your body it’s telling you to slow down. 
    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Hi Rich123

    Im so sorry to hear about your recent diagnosis.

    Im three weeks into Radiotherapy daily Mon-Fri just had session 15/35 and having second Chemotherapy 10hr overbights session on Monday .

    My Tiredness started just after diagnosis I went from doing a daily 3 mile walk  after work to only just making it up and sown stairs …it felt like someone had removed my batteries! 

    Like Hazel said our bodies are carrying cancer which is what is zapping your energy levels … you aren't being lazy !

    I googled myself silly in the beginning … it was NOT helpful I havent been anywhere near it since I joined this site !

    The people on here are so helpful … theres never a daft questions and always someone to be a listening ear or give great advice as they have worn the t- shirt and still here celebrating their lives and a great inspiration to those of us on this crazy rollercoaster of treatment.

    Get plenty of rest whenever your body needs it , try and get some fresh air when you can exercise/ walk only when you feel able.Im sitting in garden 15-30 mins a day and walking( very slowly) around the house.

    Good luck with your treatment I felt so much better once I started treatment like I was finally starting to get rid of the cancerFingers crossed

    Take care

    Debbie

    Debbielouise111 T4 a3NMO HPV*

  • Hi Rich

    Sorry to hear of your diagnosis but you will get some good advice from this forum as so many have experienced something similar to you.

    In relation to the tiredness. On top of what the others have said you are currently in a time when anxiety can take it's toll. One of the side effects of worry and anxiety can be a feeling of extreme tiredness. This may also be adding to what you are already experiencing. As the others have said things will fall into place one you start your treatment. The tiredness will eventually recede but it will take time so you can't rush it.

    You will have to go with the flow.

    Best wishes for your upcoming treatment it can be difficult but hang in there things will get better.

    Lyn

    Sophie66

  • Hi Rich

    I had tonsil cancer (surgery then RT + chemo finished a couple of months ago). Before diagnosis and surgery, apart from a large tonsil, I had none of the symptoms of tonsil cancer. But I was v tired, to the point of just dropping asleep randomly during the day. 

    The tonsil removal got rid of the tiredness. But fatigue has come back with the RT.

    all the best

    Mike 

  • Hi Rich I had nasopharynx as well, diagnosed in May 2023 T2N1, undifferentiated. 7 weeks of chemoradio finished end of July and I had my scans few weeks back which showed complete response. 

    I did not have tiredness ahead of the treatment. My only symptom was blocked nose and the tumour got debulked quite  a bit intraoperatively during the biopsy so my breathing was fine after that. Do you still have congested nose - that might be a reason for your tiredness. Otherwise I would say it could be low mood. I was shell shocked when I heard the diagnosis, I was 42 and felt completely healthy with no symptoms other than a blocked nose, I had the worst week of my life but psychologically my inflection point was when my doctor sat down with me with pet scan 1 week after diagnosis and told me about the treatment and said I have very high chances of cure.   

    It is a rare cancer this part of the world but very sensitive to RT and very curable. Success rates for stage1-2 are approahing 90% and stage 3 80%. Keep your head up you will be cured.

    Hit me up with any questions anytime.  

  • Thank you so much for your time and advice. Its lovely to know it's not me just feeling lazy and does effect other's although I wish no one ever had to go through this silly time! 

    Really appreciate it.

    Many thanks and all the very best.

    Rich

  • Good afternoon and once again thank you for your advice late last year.

    I finished chemo and radio at the end of December. Obviously January was bloody awful yet still going thankfully. I have my scan on the 25th of March so fingers crossed yet was wondering how you felt physically at this stage please? I am bloody knackered all the time. I was generally quite fit and in a very physical job yet nowadays I'm exhausted after small walks etc. Also my neck feels like I've been strangled, very sore inside and out and constantly feels like I need to clear my throat?

    Sorry to sound so daft as I am still alive, yet I really don't like asking doctors etc.

    Many thanks again. Rich

  • I am bloody knackered all the time.

    Hi. Thats normal. It’s the radiotherapy which causes radiation fatigue. Theres no shaking it off. You have to rest. It does get better though you can expect the odd wave that poleaxes you even up to a year. Best wishes xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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