T3N2 P16 base of young,tonsil and lymph node

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Well what a turn out had a cough wouldn’t go away antibiotics no good chest X-ray nothing GP sends me to ENT - you have a SCC needs Raditherapy and Chemo - that was 4 weeks ago, MRI CT and PET later looks like treatment starts on the 10th, general concensus is it’s treatable 70%  feels like it’s bigger and more sore - mm PEG next week it’s beginning to sink in this is real and is going to hurt

  • Not only treatable but highly likely to be curable Paul. They are very skilled at treating your kind of cancer and the prognosis is very good. Strap yourself in and hunker down in here and you’ll get tons of positive help and advice from others who’ve been through this. It will take a chunk out of your life but for the vast majority it is well worth it. 

  • Hi Paul. Mark is spot on. This cancer is curable. I'm four years plus clear and leading a normal life. the treatment is rubbish but doable. this time next year you will be a new man. Welcome to the community. Stick with us. Somebody is always around to help with any questions and tips as you go through this.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi, Paul, welcome to the group from me. Just how MarkEL has said head down, take each day one at a time, the chances are high for a cure, many of us on here have had the same treatment with good results, and still here to tell the tale. It's good that you are having a PEG, that will take the worry of not eating away, if it becomes difficult to eat during your treatment. You will feel a lot better about it all, once you get under way with the treatment. Any questions or worries, just ask away on here, we are all here to help each other. All the best.

    Regards Ray. 

  • Hello. I’m 14 months post treatment for tonsil & lymph node hpv 16 +
    I had a PEG so feel free to ask anything. Had bilateral tonsillectomy then 6 weeks of chemoradiation. 
    All good now!

  • Welcome Paul, you'll find great support on here and echoing everyone that's already responded - it's curable, the treatment is complete pants, recovery is frustrating, but strap yourself in and your medical team (and the good people on here) will get you through it!

    I had a similar diagnosis last year (left tonsil, T3) the tumour was inside the tonsil only, no spread. I had the tonsil removed, followed by 30x radio and 2x chemo (cisplatin). It was hard work and a mental battle as much as a physical one. I started treatment in a similar timeframe too - beginning 1st week of July and finished 12 August. I had my RIG fitted during wk 3 of treatment, which was not ideal, but I definitely depended on it for about 5-6 weeks. Get to know your body, rest when you need to, make very small goals every day during treatment/recovery (tiny and achievable). Keep a sense of humour (harder some days than others) and stay positive! You can moan and rant and ask questions on here whenever you like! 

    Just 9 months post treatment, this May, I was white water rafting! You'll get there! 

    Helen x

     Life is good 1 year post surgery - extreme watersports & eating! 

  • Hi Paul welcome to the club that none of us wanted to join but here yiu are. My treatment started 5 years ago on the 15 th of July i was  61 tonsil cancer several lymph nodes tetc here I am approaching 5 years happily living my life. Thus will seem miles  away from where you are. It we’re all here to help you. Take it one day at a time and keep off dr Google yiuve found us in here stick with us. 
    Hazel no questions too silly to ask 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/