Hedwig
Hi, My husband was diagnosed last year with head and neck cancer, they thought it was in tonsil bed so they took part tongue and tonsil bed. They said it was clear so said it was unknown primary and he would start chem/radiotherapy, before that he had to have some teeth out and peg fitted. After all that he started treatment in September for six weeks from week 3 everything seemed to happen, sore throat, dry mouth, neck breaking out it was awful to see him like that. When treatment finished the side effects got worse. Saw consultant once a month then in February he had pet scan which showed hot spots, beginning of March saw consultant who said he needed neck dissection, when we saw the consultant two weeks ago he said he had taken away lymph nodes and gland but said the treatment had worked and he was cancer free!!! We were over the moon but he still has all the side effects, tired all the while but consultant says it might be thyroid as radio might have crossed it, also has lymphodema. Any suggestions?
Thank you for advice.
Another thing I forgot to add. RT can damage the lining of the carotid arteries leaving you more prone to vascular disease including stroke so I take BP tablets and statins to keep to keep my BP and Cholesterol really low. At five years I will treat myself to a Carotid Doppler Ultra sound
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Find going to the end of the garden having a good scream or cry helps
Yes. Very cathartic.
I talk to my bees. I told them I had cancer before I told my husband.
They buzzed back and said I’d be ok 
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi. Is this on his neck? Is he using sunblock? I was told factor 50 every day...sun or not for the first year then 30 thereafter
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
