Hello all. I’m Kendall.

Hi Kendall. Welcome to the Community. So sorry the surgery hasn't got all the cancer

As far as any trial goes each patient is a statistic but you haven't really been dumped out of treatment so try to put that behind you.

Lots of people here have surgery followed by chemoradiation. It's the gold standard.... 

My advice would be to put it behind you. You will have a new team that will look after you. Get to know them all. You new CNS will be a point of contact. This cancer is curable but as you've found out the treatment is a challenge.

I got away with "just" six weeks RT but I'm four years clear and living well. Two of our members have good descriptions of Chemoradiation.

If you click on their names the first RadioactiveRaz  has a blog and MarkEL has a diary in his profile.

There is a blog linked at the bottom of my post which might help though as I mentioned I'm missing chemo.

Stick around, there's a lot of help here

Many Thanks for the reply

my post probably a tad self indulgent,

I was trying to be honest with my feelings. 
I’ll take a look at the posts. 

Heavens...I hope I didn't give you the impression that I bought you were being self indulgent. I really didn't mean to. Rant away. You must feel abandoned and scared of what's to come. It isn't easy and we all have a right to feel sorry for ourselves. I know I did. I wouldn't have survived my early days without this community. 

Your oncologist was trying to give you the best chance by putting you up for PATHOS. Nobody was to know the surgery wouldn't be successful. You will be looked after

You'll get there

Hi Kendall welcome to the club none of us want to be in but here you are. You’re in good company we all help each other. My blogs below it might help you I had 35 radiotherapy sessions and 3 of a planned 3 chrmi sessions my chemo was planned every 3 weeks but I didn’t have the last one sone have it weekly. Your new team will soon become firm friends and allies. It dies happen purely n simply the nature of the trials have strict guidelines I wasn’t able to enter the pathos trial too many lymoh nodes affected for surgery but as Dani says chemo radiation is the tried and tested pathway. Ask us on here anythjng one if us will probably know the answer. Remember HPV driven tumours have an excellent response ti treatment. We will be here to hold your hand ir just listen to your rants. Can I ask with a Monika mint cake are you Lake District. I was treated at Leeds cancer centre. 
hugs Hazel xx

Hi, I have just read your Blog, very extensive and hugely helpful, you have put some time and effort in to that. 
Mintcake is my nickname as my Christian name is Kendall. Had my surgery in Poole, Robotic on the tongue and regular on the neck. Up to this point, an almost identical journey to you. Guess what day my next appt is ? Yep, Tuesday. Everything happens on a Tuesday. 

I have saved your blog and will be referring to it regularly. 

Many Thanks. 

Kendall 

Hi Kendall thanks for kind words. To be  honest I started the blog as it was the only thing I could  control in what was an uncontrollable situation. I started it for family ti save poor hubby  telling the story over n over   It took off and while we people get help from it I will continue to update.  Over 60,000 views so far. Poole I was looking at pools harbour birding site this  morning were over in Spain I was checking if the ospreys have started to fly over.  on holiday ( common theme ) in my blog lol. I believe in one life live it. I was 61 when diagnosed now 66 riding my bike did 35 km thus am. 
Good luck for Tuesdsy. 
Hazel xx

No not at all, I’m just wary of being totally consumed by my situation.  
I really appreciate your advice. 
not thinking straight, woke in the night and decided I’d been put on the trial to obtain more funds for the hospital when I was never suitable. Makes no sense. Middle of the night conspiratorial ramblings of a drug addled 63 year old. 

feels better in the light of day. 

kendall 

We all had weird thoughts and dreams stick with us we will all help. I went to my own funeral only woke when flames were licking side of coffin. I almost showed  John the hubby how to online bank as well. Phew glad I didn’t. Lol. I also put notes in Christmas decoration box as was convinced I wouldn’t see Christmas well I did and last month got my pension and bus  pass xxx Truaka  have strict protocols you’re not the first to be taken off so don’t even think about it  

Hazel x

Not heard if the Ospreys have passed through. They usually spotted at Arne nature reserve. 
White Tailed Eagles also around now, haven’t seen one yet. 

Mintcake said:

feels better in the light of day. 

Doesn’t it! 
I had plenty of meltdowns in the night cuddling myself on the  bathroom floor keeping quiet to not disturb/ upset husband. It’s allowed. I used to wake up thinking it was all a dream till treatment started. Sorted my affairs convinced I was going to die. I didn’t. 
67 when I started.