Diagnosed with tongue cancer ( HPV ) with secondary tumour in the neck.
joined the Pathos trial and opted for surgery and reduced RT no Chemo.
Surgery was 3 weeks ago and just received the new that cancer is still present in the tongue so I’m off the trial and will now be having chemo and RT.
it’s knocked my confidence in the team, feel I may have had the surgery for no reason, as chemo and RT were offered as a choice with no surgery. The journey so far has been with a consultant and the trial team, who have now all gone !! Feel I have been dumped as of no use to the trial. Now going forward I have no idea who the journey is with, just a name.
Just wondered if anyone has had a similar experience.
thanks for reading.
Kendall
