Newly Diagnosed -spouse diagnosed with Retromolar Trigone cancer

Hi I would think op first then chemo radiation. I couldn’t have the op as one of my lymph nodes was too close to spinal cord  for surgery. But surgeon was there so he could explain why I wasn’t going down that route If I could have been operated in it would be op then chemo radiation. 
Just choose something to watch this weekend and get stuck into that.  Weathers pretty cold up north so keep warm 

pretty cold everywhere as well. 
If I can think of any others will let you know. Remember ask questions don’t let them rant away   Anything  technical jyst ask them to explain. I was there almost an hour as I wanted to be clear in my head what was going to happen. That’s why now if they are running g late I don’t stress because I know how much time was given to me on diagnosis day. 
how’s your hubby in himself. As we all know men tend to bottle up. 
Hazel

x

This might be useful. www.cancerresearchuk.org/.../what-is-prehabilitation

Hi Dani. Just had a read and it might be useful for him hopefully. 

Jan x

It’s certainly a good thing. Folk who can manage to get some under their belt before they start do better. 

immy1 said:

Hi Dani. Just had a read and it might be useful for him hopefully. 

Here you are 

https://prepwell.co.uk/

Hi Dani and Hazel

Thanks for the info on the Prehabilitation programme. I just watched part of it and wished that I had seen it before starting my surgeries. It made so much sense and many of the things they talk about are things that I have learned the hard way through experience over several surgeries. It would have been so great if I had known this info before starting my surgeries. I particularly liked the info on mental preparedness as with experience now I realise this is half the battle along with being as physically fit as able within your abilities and having peer support.

With my first op I battled through alone and made it up as I went along and it did not all go well. For my last 2 surgeries I have had the support of this forum which has made such a difference. No one really understands what you are going through unless they have also had the experience. Supportive family and friends are great but they don’t really get it and just want everything to get back to normal when in reality this is not always achievable.

I would recommend others to have a look at the Prehab programme info.

Sending positive thoughts to all of you out there starting or going through treatment and recovery.

Lyn

Hi Lyn

We are going to ask about this but from a search on our hospital website it doesn't seem like they offer Prehab.  Yes - support from family and friends are important but only you know how traumatic it all is for those affected.  Having said that it must be awful to have absolutely no-one to have a talk to.

Jan

x

Sophie66 said:

Thanks for the info on the Prehabilitation programme. I just watched part of it and wished that I had seen it before starting my surgeries.

Yes I agree. They should be part of the whole package and every hospital should offer it. Money is a huge constraint though

Hi Immy will be thinking of you tomorrow. Don’t be rushed ask them to explain anything you don’t understand. When you’re uo tomit pop on and let us know. 
hugs Hazel x

HI Hazel

Thanks for your kind  thoughts.  We thought that diagnosis day had to be the worst day ever but the thought of tomorrow is even worse. Since yesterday I felt in total fear thinking that the dreaded day will soon be upon us and we will be told that there is nothing which can be done. My hubby just says he is trying to take the attitude that whatever we find out is out of our hands but even he says he can't think like this all the time and is obviously very scared. I know I wouldn't help him talking about it anymore so I haven't done so. We will have to see what happens tomorrow.