Newly Diagnosed -spouse diagnosed with Retromolar Trigone cancer

Dani I have already rung them once and I will probably end up ringing them again before long. I think you have given me some great advice and support though. 

Jan xx

immy1 said:

I'll get a must try harder on my report for this year! 

Don't be daft. What you're feeling is normal but you have to put it away. Do you think a visit to the GP might help. Are you sleeping?

Radiotherapy messed up my lymphedema 

Now I can't swallow food

It's hard to live like this 

Hi Jan. Please don’t stress, about  lymph-node involvement. You may not think that the treatment is happening. Quick enough. I was 63 days from first diagnosed till treatment starting I had 2 lymph  nodes involved was involved and by the time of my last pet pet CT scan prior to treatment started. I had seven lymph nodes I couldn’t have surgery due to closeness if one and my spine.  radiotherapy if needed will be offered to your hubby if after surgery they discover there is lymph-node involvement or they’re not happy that they haven’t got all the lymph notes You’re going down a little rabbit,hole  you don’t need to I know it’s easy to say and hard to do, but you have to trust the team and  have to trust the system it does work is a tried and tested  route. . where head and neck cancers are eminently curable  you need to try and hang onto that fact . Be careful as last thing you need if fir  you to be ill 
hugs Hazel xx

I wasn't sleeping for ages until Thursday after our last hospital appointment and I was hardly eating either. Now though I am doing both so I must have got things a bit under control.  As for surgery they are not much use actually. Neither of us have a permanent GP anymore and getting to see them is practically impossible. Same for most now though Dani

xx

I think that youv'e hit the nail on the head there Hazel. It's the delay between having a quite 'good' outlook last week after scans and the thought of what it is doing between now and then op. I do need to be careful and not get ill myself you are so right as ever.

Jan

xx

Hi Jan don’t be afraid to ring them as often as you need to. Plus there’s nothing wrong if yiu need a mild anti depressant it’s not uncommon.  
Hugs H x

Yep you can’t beat a been  there done it person. As my oncologist explained my lymph nodes did their job they contained the cancer stopped it spreading to elsewhere. 
Hugs Hazel x

That's interesting Hazel ' lymph nodes did their job they contained the cancer stopped it spreading to elsewhere.' I thought that they were responsible for sending out the cancer cells to other areas?

Jan

x

immy1 said:

I thought that they were responsible for sending out the cancer cells to other areas?

No. They act as filters

Oral cancer metastasis outwith the neck lymph nodes is extremely rare