Nasopharyngeal Cancer - Good News Just In

Hi shinbane, sorry to read your wife is having this trouble in her recovery. If she is not eating at all and losing a kilo every day, you really have to contact her team and let them know, so they can get something done. Your wife needs as much nourishment as she can get to help her recovery along, it is often said on here, treat food as fuel for recovery. All the best to you both.

Regards Ray.

Hi Shinbane I would recommend contacting your wife’s dedicated cancer nurse or the cancer hospital team she has been treated through. I was still managing to drink the ensure drinks diluted with whole milk and with ice twice a day which helped see me through until I could start eating small meals and yoghurts. I lost just under 3 stone and was about 3 weeks after treatment finished before I started being able to eat a bit. Is your wife managing the ensure drinks?They were a lifeline for me. When I started it was very small meals such as cuppa soups cream of chicken very bland and cool enough to take. Let me know if there is anything else you want to know and I wish your wife strength to get through the next few weeks …it will improve x

Hi Luggs

Just checking on how you are doing

Hi Shinbane. Welcome sorry you’ve found yourself on here. To be honest I would ring the oncologist medical secretary no one last  that long just on sips of water inti recovery in my opinion. She may well need are hydrating via a drip and a re look tk see if n g tube Dan be fitted. Also get in touch with the p a l s department at your hospital cancer patients should have access to help in recovery in so so sorry you’ve found yourself in this place. In meantime can you thin the high calorie supplements ensure or fortisip down to get some food insude her. Recovery needs nutrition by any means. Maybe the oncologist can decide a n g tube can be fitted or even a peg she needs help. 
Don’t mean to scare you but please seek help. 
Hazel x

Hi, thank you to all kind enough to read and especially those who responded. Update is-went to local hospital today for bloods (cancer centre we have had to go to every day is 40 miles away..which made things even harder) and they sent her straight to A+E Tara is now admitted and on a drip, first for electrolytes, then for fluid, then general nutrition, and they have treated the great seeping burn wound on her neck, hoping this turns the corner. And even watered down fortisips wouldnt go down, the last two days even the plain cold water was coming straight back up. Seriously, thank you all for caring..it really helps.

So pleased the team are taking action and Tara is being cared for x thank you for updating us 

That 's good, hopefully she will start to feel a bit better in a couple of days. don't forget if you have any worries or questions just ask away on here, we are all here to help each other.

Hi Excellent news it’s scary but she’s in the best place  only  sorry you’ve had to find yourself in this position. I would take it further whenTara is home  as to why your cancer nurse or someone from team hasn’t been returning your  calls. Even if it’s so the next person gets attention .i know what you mean I had to travel some days a 90 minute journey to my cancer centre. 
Please let us know how she progresses. 
Hazel x

please look after yourself as well Tara will need you when she’s home. 

Just to keep up, and thanks again, after a few days in the local hospital they found a fungal infection that was causing most of the blockage. This was treated and we are finally making a bit of progress, some drinks (strangely coke goes down better than most things) and a few very soft foods such as soup and very soft boiled eggs-things are a tiny bit easier every day at the moment, and the external burns have been dressed and are healing, Thank you all again! Still no word from macmillan though..

That’s good to hear. hopefully things will gradually improve now. Really disappointing about the lack of reply. all the best to you both x