Hi it’s Anghog here….sorry I have not posted actually about myself before…I’ve just replied to other posts but I wanted to put a bit up now about my tale. On my birthday on August 23 last year I was 53 and I received the news that the lump on my neck was a secondary cancer and the most probable primary was behind the nasal cavities…caused by the mutation of the Epstein Barr Virus. this was confirmed after a biopsy under general anaesthetic. Unfortunately a couple of weeks later my husband died suddenly of a heart attack and he was buried two weeks before I started my treatment at the beginning of October. He had been ill and I was doing home dialysis for him but it was a huge shock. Since the. I received 5 rounds of chemo and 35 radiotherapy sessions which ended on 16/2. My consultant said at the start we are aiming for the treatment to be curative. the journey has been hard and I ended up with Ecoli and was hospitalised for 5 days in December. I also developed blood clots in my legs ..so still injecting for another month. But the great news is that yesterday the results of the PET CT scan were confirmed to me. I have been given the all clear. I know we can never be sure it will not revisit us….but I just want to give everyone some hope and that there is light at the end of the tunnel. I am now looking forward to a new and different chapter of my life…lots of catch ups with friends and family. truly grateful for this second chance and I know Brian is looking down and has been looking after me x
Anything you want to know or just a rant pop on here. I remember m my results as if it was yesterday. Seize the moment Brian will be with you as you go forward I’m sure.
hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 5 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
Thank you for your post, my wife has exactly the same problem, and has just finished six weeks of RT which has hit her very hard, the constant coughing and vomiting, the total inability to keep anything at all down, the very rapid weight loss, the pain and the sleepless nights (for both of us) are taking a toll. Its a big help to know that you have come through and are happy and healthy again. The swelling at the back of the throat has made it impossible to fit a NG tube. We are wondering how long one can last on no nourishment other than odd sips of cold water. Our next appointment is supposed to be a telephone consultation in two weeks time. Not sure my poor Tara will last that long losing a kilo a day..wish I knew what to do..we had a Macmillan nurse who used to call every week and have long chats and make sure everything was going ok, but since the treatment got difficult she has dissapeared, no calls, never available, never rings back, feeling very isolated and confused. Your post was a rare bright spot!
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