Hi all, thanks for welcoming me into this community. I am new to this world. I was diagnosed with hpv tonsil cancer last month with a nearby swollen lymph that didn’t show as cancerous in any scans but caused some obvious concern. Tumour is stage 2 but as it seemed to be a contained tumour it was agreed surgery would be worth a try first so we can biopsy the equivocal lymph node. Then chemoradiation or just radiation if needed (or possibly no further action but not sure how I feel about this). Anyway, I’m 5 days post surgery and in agony but the inability to swallow is driving me mad and I’m rapidly losing weight that I can’t afford to lose. I choke or spray everywhere. I really don’t want a tube and can’t even stomach ensures. Any tips to get swallowing back on track as quickly as possible?
Dani/Hazel - I feel like I already know you both as I read your blogs about a month ago when I was first diagnosed :-)
Ah bless, you’ll know we are legends, then 
I remember all too well how full of despair I was in the early days. Strangely the pain has gone just like childbirth but the fear is still clear in my mind.
Like hazel says, we all help each other. The physical battle is easy the pain transient the mental battle is something else. You’ll get there a day at a time.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Before my diagnosis not one if my friends and famiky heard of h p v oral cancer now we’ve a whole community!
Yes throat cancer was always either an old man’s disease or an alcoholic’s wasn’t it. HPV has crept in like a thief in the night. At least in 50 years vaccination would have made it a thing of the past.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Ah bless, you’ll know we are legends, then
I like to think of you as the Batman and Robin of the group, always first on the scene when someone's in trouble
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
I like to think of you as the Batman and Robin of the group, always first on the scene when someone's in trouble
OMG!
Which one am I ?
No don’t answer that!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
OMG!
Which one am I ?No don’t answer that!
You can argue that out between yourselves
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
