Tonsil Cancer Stage III newly diagnosed

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Morning Folks

We are new here.  Hubby diagnosed 6 weeks ago with Secondary Cancer of neck Lymph Nodes.  After a long wait and various tests, it was confirmed yesterday the Primary Cancer is in the tonsils - Stage III - spread to neck Lymph Nodes and an area at back of tongue.  We meet with Oncolgy Team on Thursday.  Planned treatment 6 weeks Radiotherapy along with 3 cycles of Chemo.  All very frightening and daunting as my Husband aged 56 years has never been in hospital in his entire life.  He carries NO extra weight - desperately trying to build him up and find nutritious meals that are soft and easily swallowed.  

Any advice or tips, along with information regarding his forthcoming treatment plan would be very gratefully appreciated.

Thank you

  • Hi and welcome. 
    sorry to hear about your husband. 
    The treatment is not a walk in the park but doable a day at a time. I managed at 67 and I’m now three plus years clear. 
    There’s probably too much information overload at present but you could look at my blog linked at the bottom of this post. 
    One of our members  has an excellent diary if you click on his name here. 
    My advice for now is to stay off Google. Make sure you have your Husbands CNS contact details for any day to day queries. 
    Stuck around here to ask anything as treatment progresses. 
    This  cancer is eminently treatable and cure rates are high so hold onto that. 
    It might be an idea to make sure he keeps as fit as possible and gets some weight on. The treatment makes it difficult if not impossible to eat and many of us end up being tube fed. 
    Best of luck. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Welcome from me I am Hazel almost 4 years post radiotherapy for tonsil cancer with several effected lymph nodes . It’s nit easy but I was 61 and I did it. 35 radiotherapy and 2 chemo now happily living my life. There’s lots of tips and advise but take it baby steps and keep off Dr google . I  bought  a nutribullet to get extra calories into me prior to treatment made smoothies with pea protein in them they tasted terrible but did the trick ,also double chocolate magnums did as well not healthy but yummy. 
    My blog below might help. 
    As Dani say the treatments hard the results are excellent. 
    Inwas due 3 chemo but  only had 2 of the planned 3 m inhad cooed very well with 2 but was starting to get slight ringing in my ears tinnitus .In conjunction with my income decided to forgo the 3 rd session it happens quite a lot. The chemo will most likely be cisplatin. Those chemo days are Lon mine used to be 10 hours with a radiotherapy session thrown in for good measure. Any questions just ask ine if us will always try to help. 
    iIts mind blowing ti start with but take it day by day. If it helps I’ve just returned from Spain cycled 800 km am now 65. So life does continue. 
    hugs to both if you Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi 

    Sorry to hear of your husband's condition...you have come to the right place. I was diagnosed stage 4 tonsil, tongue and lymph glands 4 years ago...I was 55 at the time and in reasonable shape. I had similar treatment which was tough but very doable. I am now back to a normal life and work and play golf weekly. 

    My advice is. 

    1 stay off Google,, everyone on here has been down this road

    2 go with him to every consultation...I only heard what I wanted to hear 

    3. Try and find something to maintain his fitness...I walked 8 miles a day when I could...it's generally all you can control but also gave me time on my own to process what I was going through 

    4 try and maintain a positive attitude...my kids were at a sensitive age and the last thing they needed was watching me fall apart...it really helps although I agree difficult to maintain.

    Good luck and I'm sure you've got this

    Chas

  • Hi, sorry to hear about yr husband. I have exactly the same, I’m post treatment by 9 weeks now so I know how daunting it all seems.  Has treatment started now? I had more chemo as I had this weekly and I found the sickness really tough, everyone has different symptoms so it just depends how luckily or unlucky your husband is. Only advice I can give is take one day at a time, cross those days off the colander and keep the end in sight and rest daily but try not to dwell on what’s happening, do normal things if you can. Good luck xx