Hello

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Hi All

Was diagnosed with a tumour of the larynx on the 17th have had ct scan mri and a biopsy on the 23rd which havent had the results for yet has been a very scary time for me but am trying to take every day as it comes have been told i need an ultrasound in the new year 

Have been on this site for a few days and it so nice that people take time to advise others who are just starting on this road and have taken heed not to google did a few times and really scared me so only come here for advice as it has helped me so much as prediagnosis is so hard.

Many Thanks 

Chris2123

  • Hi Chris and welcome. Waiting is rubbish. We all get through but it's not easy. We we will all help as much as we can so stick around

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani

    Thanks for your kind words will def be sticking around as coming here has helped me so much

    Read your blog its excellent 

    Will update as soon as i know 

    Many Thanks

    Chris

  • Thanks for reading it it was the only thing I could control. It saved my sanity 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Chris. The waiting is the worst part it’s fear of the unknown. Good to keep off google stick with us will all help when  we can.

    welcome from me as well 

    Hazel

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hi Hazel

    Thanks for dropping by to say hello so appreciated i read your blog its amazing and so helpful 

    Will keep updated as i know will need any advice i can get 

    Many Thanks

    Chris

  • Hi Chris only too happy to help. You can’t beat first hand knowledge. In the scheme of things our cancers are fairly rare. No one I knew had heard of it before my diagnosis.

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hi Hazel

    Yes totally agree have done a bit if reaserch on here and says they are very rare but am so pleased that im chatting to people who know what to expect through all of this means so much

    Many Thanks 

    Chris

  • Laryngeal cancer is much more rare than oropharyngeal. I think the statistics according to CRUK are 

    1 in 188 UK males and 1 in 834 UK females will be diagnosed with laryngeal cancer in their lifetime.

    1 in 55 UK males and 1 in 108 UK females will be diagnosed with oral cancer in their lifetime.

    Most OP cancer is due to HPV virus now that smoking rates are much lower.

    It's the sixth most common cancer diagnosed. We don't hear about it because education is sorely lacking. Even now that there is a vaccine against HPV the stress is on preventing cervical cancer in women. Vaccination is free in this country, cervical cancer rates are going down in young women and disease rates will come down in the other cancers it causes as they years go by

    I hadn't really heard much about it either except that one of my hero's (Graham Chapman) died of it...but then he drank like fish and smoked like a chimney. I knew about it and indeed diagnosed my own cancer as soon as I found it.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Dani 

    Didnt realise it was that rare did read somewhere that if its in the glottis region it does not spread so hopefully ill be lucky 

    Thank you for letting me know 

    Chris

  • Fingers crossed.xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge