Hi everyone this is my story so far, 2 months ago I started snoring and a feeling of something dangling in the back of my throat, sometimes I’d sort of choke on my saliva like going down wrong hole, so mainly cos of the snoring which seems to have come on all of a sudden I took a trip to my GP who referred me to ENT at my local hospital where they examined the back of my throat with the camera up the nose and found a lump in my Larynx and also one of my vocal cords wasn’t working and it was that which was causing the snoring
since then I’ve had a CT and MRI plus biopsy on the lump found in my larynx, tomorrow I have a ultrasound and aspiration biopsy on my lymph nodes in neck, and Tuesday I have another appointment at ENT and hoping for results of biopsy on the lump they found
so as you can imagine I’m going through thoughts of pending doom and I think I’m going to die I know you shouldn’t consult Dr Google and have got a severe rollicking from the Mrs etc , thing is when you read up about this sort of thing most say that it’s smoking and heavy alcohol use that puts you at a higher risk and I do neither, also the permanent sore throat hoarseness and cough etc I’ve had none of that only the snoring and choking sometimes
ive got a thousand and one things going through my head at the moment and I’m absolutely petrified, thinking has it spread have I had it for ages and not even known hence no symptoms, I’d appreciate any responses and I will keep you updated of all the test results
Hi Kenny your diagnosis and treatment is very similar to my first one. My primary was in my piriform fossa, which is part of the hypopharynx and I had lymph node spread, though nothing at that point in my vocal cords. I also had a neck dissection before the RT and chemo which you don't mention, so I assume you're not having one.
In my case I drew the short straw and it did come back six and a half years later but more often than not it doesn't, and very little point in worrying about it as Dani has said, though not an easy thing to do for many.
Removal of voice-box is, as you say, a bit radical but it was my only option last year and I'm very comfortable with how I am now; the chances of you going down the same road are small though, very best of luck with it.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Hi Kenny. The PET is to check fir spread as you’ve probably surmised. I think a lot of folk have a PET/CT if the pathologists find any cancer in your lymph nodes. I didn’t have any nodal spread but I did have a chest CT to check
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Good news on your teeth, I lost a few lower ones but at the back fortunately so not visible.
Scan is normal. I had a CT, an MRI and a PET-CT ahead of my first treatment, but most of that was because they couldn't find my primary site, the PET-CT was "eye to thigh" to check for spread.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Cheers Mike 
