Hey everyone my names jenny and my dad was diagnosed with tongue cancer squamous cell cancer on the 15th march 2021. He had a biopsy, CT scan and MRI to see if had spread where? Thankfully it hadnt but the consultant was concerned about a growth in the side of my dads neck. So sadly after dad was examined all round hes head and neck we were told he had a very aggressive Tongue Cancer and it was at stage 4 already. Dad had been having a bad " toothache" and was never one for drs or dentists hospitals definitely no! But didnt ever imagine it could be that but I put on a brave face for my dad to be strong but inside my heart was breaking. Theres only me and dad he has no family as he didnt have a very good childhood and is separated from my mom so theres only been me who's been by hes side all these years. So the clinical plan was that dad have hes PEG fitted and then RADIO for a week then 2 weeks break then another week but when dad went for hes Mould fitting for radiotherapy the nurses and drs noticed how much weight my dear dad had lost and how malnourished hed gone and living alone cos hes very independent I never knew so they said dad needed this PEG asap! He needed to be strong for the radio as it's very aggressive. So moving on a couple of weeks dad is now in the hospital been there a week now as hes blood pressure was so low and he wasnt having enough fluids so he was dehydrated so hes had the PEG fitted a few days now and had feeding bags and the drs have said how better he looks. I have PEG TRAINING with the dietician on friday with dad so I can see how its managed so I can make sure that dad can manage it too. A care package is in place for when hes back home hell have the district nurses and carers go in and as I'm a carer for my hubby I can also go down as much as I can to help dad aswell. It's been such a sudden and heartbreaking journey so far and as I'm new to this group I just want to say what inspirations you all are! You all sound so brave and reading your journeys of you and your loved ones breaks my heart but stay strong and love to you all thankyou so much x
Hi Jen louise
well done on peg training you’ll be a big asset to you dad in the coming weeks
take care Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hey hazel how are you? Thankyou for your message and thanks for giving me your blog address cant wait to read you sound so brave and been through so much but talk soon hun and take care too xx
Hi Jen, sorry that you and your Dad are going through this. My hubby was diagnosed with tongue cancer too, on 16th March (his birthday was 15th!). His op was delayed as the surgeons considered which op to do (previously had throat cancer two years before, with extensive treatment). I'm glad your Dad is getting on well with his PEG. My husband couldn't stand having it, but fortunately managed with an ng tube after his tongue op. My hubby had radiotherapy for his previous cancer, and it was a difficult slog, so good luck for your Dad. Hubby has an appointment on Friday for the results of his surgery, though we already know that they didn't get the margins they wanted, and more treatment will be involved.
So sorry Nat that you are both on this awful treadmill again. Sending you a big hug. Xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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