Hey everyone my names jenny and my dad was diagnosed with tongue cancer squamous cell cancer on the 15th march 2021. He had a biopsy, CT scan and MRI to see if had spread where? Thankfully it hadnt but the consultant was concerned about a growth in the side of my dads neck. So sadly after dad was examined all round hes head and neck we were told he had a very aggressive Tongue Cancer and it was at stage 4 already. Dad had been having a bad " toothache" and was never one for drs or dentists hospitals definitely no! But didnt ever imagine it could be that but I put on a brave face for my dad to be strong but inside my heart was breaking. Theres only me and dad he has no family as he didnt have a very good childhood and is separated from my mom so theres only been me who's been by hes side all these years. So the clinical plan was that dad have hes PEG fitted and then RADIO for a week then 2 weeks break then another week but when dad went for hes Mould fitting for radiotherapy the nurses and drs noticed how much weight my dear dad had lost and how malnourished hed gone and living alone cos hes very independent I never knew so they said dad needed this PEG asap! He needed to be strong for the radio as it's very aggressive. So moving on a couple of weeks dad is now in the hospital been there a week now as hes blood pressure was so low and he wasnt having enough fluids so he was dehydrated so hes had the PEG fitted a few days now and had feeding bags and the drs have said how better he looks. I have PEG TRAINING with the dietician on friday with dad so I can see how its managed so I can make sure that dad can manage it too. A care package is in place for when hes back home hell have the district nurses and carers go in and as I'm a carer for my hubby I can also go down as much as I can to help dad aswell. It's been such a sudden and heartbreaking journey so far and as I'm new to this group I just want to say what inspirations you all are! You all sound so brave and reading your journeys of you and your loved ones breaks my heart but stay strong and love to you all thankyou so much x
Hi Jen Louise and thank you for posting your loving and thoughtful message.
You sound like a lovely daughter to be supporting your dad through this very difficult time.
I hope you can both weather the treatment and that it buys you some time together.
It won’t be easy but please come and share your worries if you are able. There are plenty of shoulders to lean on anytime
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Oh bless you sweetheart , tougue cancer not nice , I’m still recovering 20 months on , sending you lots of hugs and hope you are getting plenty of support 
Hey Linda its jen 
I justed to let you know how I got on friday with my PEG TRAINING for my dad. Well I thought it would be a simple demonstration with my dad having a little tube in hes belly and I just attach the feeding syringe to hes tube and feed him boy was I wrong!! Lol no it was much more complicated cos u see my daughters dad sadly passed away 5 years ago with throat cancer he was only 49, we had been separated before my daughter was born but she grew up with him so it rocked her world but she has a wonderful stepmom who has now become one of my best friends and shes been helping me with so much advice and support throughout my dads cancer so I told her when i got back from the hospital and she said the PEG my daughters dad had was so much different to my dads. But it's under the NUTRICIA HOMEWARD SERVICE. And the tube is attached to this purple little machine and you have put in the dose and how many mls dad has to have and he'll be having a litre a day of liquid feed , 84mls an hour but it was really interesting and terrifying at the same time like how about if I dont get it right or how about if an alarm goes off on it?? All these questions but it's a lot simpler the dietitian said then it looks so I'm just relieved my dad will have the nurses go in to do the feeds for him as I'd hate to get it wrong. But I asked how he felt about it and he said typical dad oh it's ok I dont feel anything bless him he is sooo much calmer and braver then I am and hes the one who has to go through all this but yea I just wanted to let u know so sorry I've offloaded a bit! But how are you sweet? Hope everything's ok and I hope you dont mind me asking but is your dear father in law still with you? Talk soon take care x
Hey julie thankyou so much for lovely message yes it's been very exhausting looking after the 2 men in my life! Lol but we have lots of support from my hubbys sister shes been amazing honestly I think shes kept me going to be honest julie but I think my dad will feel more happier once hes home from the hospital so hes in hes own surroundings. But I'll keep you and all the lovely kind people on here updated on my dads progress. Sending lots of hugs take care sweet xx
