Hi - I am a year down the line since first having problems - but only diagnosed a few days ago. I have put the details in my profile if thats OK.
I have throat/neck lumps and difficulty swallowing solid foods - waiting for the results of all the scans/biopsy.
This has to be the scariest moments in my life so far - I told the guy in the hospital it is like being hit in the face with a shovel (not that I ever have been! but you know what I mean)
Doctor laughter and Doctor exercise have been my best friends till now - I have white coat syndrome and health anxiety brought on by my reaction to surgery/rehab after a skiing accident. CBT was really usefull - the mindfullness exercises/teachers made things worse because it was health anxiety - listening to my body was the last thing my mind needed to do. I pretty much had this in control for about 6 years - But now it is back -(suprise!) I call it my chimp (long story from the Chimp Paradox)
Sleeping - so this is something I would really like to try - My mind has other ideas though- and can think of at least a million scenarios that might or might not happen - and I do need to listen to it.
I hope I am able to contribute to the Forum and give something back - the resources are so useful - I would have been even more lost without them.
Hi Roseberry topping and welcome to the forum. Sorry for the delayed reply - I'm just catching up!
Can't offer any advice regarding your 2nd vaccination I'm afraid but wanted to congratulate you on keeping yourself motivated while you're waiting for your results. I too find walking helpful for both mental and physical wellbeing. We're extremely fortunate in that we have woodland opposite our cottage.
I do hope you manage to sort out your 2nd vaccination successfully and keeping my fingers crossed for your results.
All the best.
Linda x
Thanks Linda - am stilling leaning how the forum works -
Steve
Result - went to pharmacy today with a view to us swapping vacinations - No problem they will do us both. So simple in the end - but what a going on before hand to try and sort out. I know its not a big deal but at least I/we have a little bit more protection when having to go for hospital appointments.
Excellent news. One hurdle successfully negotiated.
Linda x
Hi Steve Excellent news one step further. It’s the little things that count.
whens consultant meetings?
hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
They are doing carers or potential carers here no matter what their age.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi - no date as yet - want to get it over with - but don't want to be told exactly what it is either -There is always this hope -
Of course I realise it will be of benefit to know what we have to deal with - but at the moment we are still both feeling like we are in a dream and we will wake up and it was all just a big mistake - The mind can be one crazy bit of kit!
Cabined up today because of the weather - so default setting is to do some decorating to keep busy.
Thanks again for replies
Steve
Hi Steve. Waiting is the worst part of all this. The stuff it does to your head is frightening. We have all found that our bodies and minds settle down, even if the news is bad, once a treatment plan is in place. We don’t take notice of how much our present is predicated by a future and in the early days there seems to be none.
im a retired vet. I know what a SCC looks like and after dreaming I had cancer for months and my body telling me something wasn’t right I found it.
Even though I had the diagnosis before the medics, it was still like a punch in the face to get it confirmed. Then I dreamed I didn’t have cancer and those first few seconds on waking were wonderful.
Doesn't the mind do weird stuff
I hope you get an answer soon then you can get on and fix it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Meltdown yesterday - and thought I was doing OK - We planned a relaxing day out walking - and I took my bike - all turned to ratshit as we hit normal everyday problems - hence no sleep last night.
It will be 2 weeks on Monday since biopsy and consultant said shuold have results in 2 weeks time and set up a meeting. The most recent neck lump has grown in my opinion since then - so I have e mailed his secretary to ask if results back and is there a meeting set up? I know Covid has caused delays - but there has been so much wasted time using phone calls previously as a diagnostic tool - I don't want to be a nuisance but neither do I want to just wait for things to happen.
I am thinking of signing up to the Headspace app to see if that will benefit with sleep patterns - and we are going to try and plan our days better - seems walking in the woods is still our best activity to get through the days -
The help from the forum and Macmillan organisation is so much appreciated -
Don’t worry about being a nuisance. Your consultant won’t think you are. The nurses are wonderful too but admin staff sometimes need a kick up the proverbial. Have another go on Monday and keep walking. Xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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