Coping with Husband is palliative

Oh gentlewaves my heart goes out to you, I can not imagine the pain you must be feeling. Do you have a Macmillan support nurse or anyone that you can talk to?

I hope someone will have some answers about the mets, I just didn't want you to think that no one was listening.

Julie xxxx

Oh Gentlewaves I am so sorry. You must both be so devastated. 
There are few people who have posted along the same lines. I did a quick search for you and there is nothing current. 
Please have a look at this page on Macmillan 

https://www.macmillan.org.uk/coronavirus/help

ignore the coronavirus tag. There is lots of other info including a web chat option if you feel you can’t actually talk to somebody in person. 
If you do want to talk call the helpline 0808 808 00 00 which is manned 7 days a week from 8am to 8 pm

I hope something can be done to give you some time together 

Thank you x

Hi Gentlewaves. So sad to read your post of today . My heart goes out to both of you. Am sorry I can’t help with the lung mets. Maybe I can help with the dry mouth I find chewing sugar free gum held to stimulate the saliva glands.  Drinking water I usually try 2 litres a day. At nighttime I always  pop half or a full xyimelt in just before sleep. You can buy these online. 
Dani has given you a link to Macmillan please try them you may find some help. 
Cancer is really cruel and I’m so sorry that all your dreams are being snatched away. 

Hi Gentlewaves I really feel for you and your husband, life is very cruel at times, and very unfair. You are both in my thoughts, my heart goes out to you.

Kind regards Ray.

Thanks Radioactive Raz my husband also uses the xyimelt at night and finds them good. He drinks water but it doesn’t help with eating and tried chewing gum. Thanks for trying to help. It seems my husband had the same cancer hpv16 pos as you and the same radiotherapy he didn’t have the initial chemo because it was at the beginning of lockdown and they stopped giving chemo. They told him his throat/tonsil cancer has gone so such a shame spread to lungs, he later had chemo as palliative to try to slow growth in lungs. We will never know if he had the initial chemo if it would have prevented spread, he is only 55  

Hi 

I’m not a dr but my oncologist said the chemo adds approx 4% to the success rate by accentuating the tumour. . I was scheduled for 3 treatments but only had 2 so it is hard to say. Sometimes it’s the luck of the draw.  

someone contacted me this mornjng who had seen your post but doesn’t post on Macmillan  there’s a clinical trial at Clatterbridge hospital trialing nivoulab for lung cancer  spread in head and neck patients   The lead is Christian Ottenmeiser may be worth investigating?  Clatterbridge is Liverpool don’t  know where you are x

Hope you get some quality time with your dear husband.

If you want to rant please pop on here we’re all happy to listen help. 
hugs Hazel c

Hello Gentlewaves

Cancer is cruel and my heart goes out to you.

I had similar for my mother many years ago and in the last few weeks my uncle with exactly the same as your husband.  Both of which I was the prime carer for.  I can't imagine the feelings you have at this moment, although I have seen what my own cancer diagnosis has put my wife through.

All I can say is that I found the hospices the most fantastic places both for the patient and the carer.  They really do understand your needs and do all they can to help you both during the terminal stage and afterwards.  Speak to them and I am sure that despite the covid restrictions they will do their best for you.

I just wondered if there had been any mention of immunotherapy? I thought that was a possible option for lung cancers. I am sure they have considered it but might be worth asking? 

 Hi Gentlewaves, you are in a very similar position to me. my partner Colin who is 56 had throat cancer in 2020. Treated with chemo and then chem / radiotherapy, first scan looked good and in March after second scan he was told it had spread to lungs. He is now on Immunotherapy every two weeks to try and stop growth and spreading. It is a fairly new treatment I think and I understand that everyone’s treatment is different.  We are desperately clinging onto hope that this will work and I have been feeling all the same things you have.