My Dad

FormerMember
FormerMember
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My Dad has been in hospital for just over 2 weeks, we have just been told that he has a large tumour in his throat, it is affecting his hearing, he has an unsafe swallow so has been fitted with a peg feed, he can't hear, and is in a lot of pain which they are managing with morphine. They have told us it is in his tongue and tonsils too, they have put him on palliative care and he is coming home Monday where he will be kept comfortable. We have been told he has months rather than years and I am devastated. Does anyone have experience of this type of cancer, I have experience with other cancers and am really struggling to come to terms with his diagnosis. I lost my best friend to liver cancer 2 years ago and really don't know what to do.

  • Hi Tameside

    Welcome to the group and I am so sorry to hear the diagnosis on your Dad.  For context I've just been through very similar with my uncle.

    Have you had direct conversations with the consultant at the hospital and are intimately involved with the treatment planning?  Having that will really help you to understand what is going on.  From what you have said it does sound like the cancer has spread significantly and they are unable to offer a curative pathway. 

    At this stage I would be engaging with the GP and making sure that your Father informs the GP of his wishes and that you should be part of the clinical care decision process as much as he is.  A Lasting Power of Attorney would help if one is in place.

    I would also be making contact with the local hospice. Many offer a service of "Hospice at Home" where they aim to keep him comfortable and, as importantly, offer you respite.

    If you have siblings it would be good to share the care of your Father if at all possible.

    Finally the Macmillan helplines will be able to offer you really good advice and support - maybe pointing you to some local groups.

    Other than that ask questions and somebody will almost certainly have the experience to offer some advice.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Tameside

    Welcome to the forum - I'm so sorry to read about your dad.

    My father in law of 93 was diagnosed in October 2015 and although he went through a gruelling operation to remove the tumour the surgeons were unable to do so as it was wrapped around his carotid artery.  He came to live with us and we cared for him until he died.

    A lady called Doris70 posted on the forum a couple of weeks ago under the thread Last Treatment.  It sounds as though her dad is going through something similar to yours.

    Peter has given some great advice in his reply and as he says, any questions do ask as there is usually someone who can help. 

    Linda x

  • FormerMember
    FormerMember in reply to PFJTHS

    Thank you for your help and advice, I will look into this straight away, he will hopefully be home tomorrow until the inevitable happens 

  • FormerMember
    FormerMember in reply to PFJTHS

    Thank you that is very helpful 

  • Hi Tameside

    welcome to the forum, so sorry  to hear about your dad. Peter has given you some sound advice and I see that Doris has been in touch with you. I hope you get dad home and some help in the next few months.

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thanks Hazel  

  • FormerMember
    FormerMember in reply to PFJTHS

    I have spoken to consultant thanks, will be contacting GP tomorrow. They say that he is too unwell to have treatment and it will have little or no impact due to how far it had gone and how aggressive it is. Dad has been spoken to about a DNR and he wants one in place. I have a sister and brother who will do all they can to help, hjs partner will help also although she struggles to walk. I'm still in disbelief and very emotional if I'm honest so trying to sort my emotional reactions out before he comes home. Thank you for your advice it has been very helpful. Bernie 

  • FormerMember
    FormerMember

    Hi tameside,this sounds similar to what I've just been told I've got,I have it in the neck and throat and I find it very uncomfortable to swallow and a very stiff neck iam very interest in how this all pans out for you and your Dad  , I  lost my Dad with lung cancer in February and I've only just joined this group today 

  • Hi Scan

    Welcome to the group.  Feel free to start a new thread and introduce yourself and ask any questions that you feel may help you.

    Peter
    See my profile for more details of my convoluted journey
  • FormerMember
    FormerMember in reply to PFJTHS

    Hi pfjths, I did attempt to post an introduction post about myself but iam not sure it actually did post.