Just starting my journey

Hi Shell

Thanks for update  take each week as it comes the first 2/3 you don’t normally notice major changes. Just keep doing what you are doing. Any help just ask there’s always one of us can usually  help. 
keep eating and drinking 

Onwards and upwards  

Hi Shell12

Glad that your primary was found as that must have been a great relief.

Now the treatment is underway as you say, there is light at the end of the tunnel. Hope your treatment is finished in no time and you can move on to much brighter things.

Best wishes

Lyn

x

Thanks for the update Shell12

Good news that the primary has been found. 

Do come back as and when you need any support. All of us are available on private message if you need a more intimate chat. Theres always somebody hanging around here. Good luck and best wishes

Hi Shell. Just to wish you all the best for your treatment. I had a primary on my right tonsil too and had it removed in October, along with a 29 node neck dissection. That was followed by 30 fractions of radiotherapy and 5 sessions of chemo. I am ten weeks post treatment today and feeling well. My sense of taste has returned and I’m eating fairly normally, but for the lack of saliva which should return to a greater or lesser degree. I have some fluid build up under my chin and also a stiff neck along the scar line, but otherwise things are pretty good. The RT and chemo were not too bad, apart from neck burns as I didn’t take enough care moisturising. It will get uncomfortable the few weeks after RT ends so you will then need to keep up your painkiller regime, laxatives (important), calories and hydration. We all react slightly differently but the common factor is that it is a very effective treatment. All the best. 

Thanks Raz. It will be good to have the advice and support from you all x

Thanks Lyn. Hopefully I might be well enough to enjoy at least some of the summer  x

Thanks Dani. It is comforting to know there are people who fully understand what I will go through and can give practical advice where possible x

Hi Mark. I am so pleased that you are mainly out of the other side of your journey, you seem to have managed really well. I don’t need a neck dissection so one less thing for me to worry about.

Thank you for the advice especially around the pain advice and laxatives, that’s one thing you don’t need to worry about with everything else going on lol x

Oh that’s good. The dissection is a pain in the neck, literally! Not having one should make things more comfortable for you. Good luck with week 2

Hi Shell12

Glad they found the primary and your treatment is under way.

As you say, things may get rocky but lots of us here who have been through similar and available for support and advice should you need it.

Take things one day at a time and keep on top of the pain killers.

Wishing you all the best.

Linda x