Effective Pain Relief

  • 11 replies
  • 150 subscribers
  • 1710 views

Can anyone recommend some pain relief that works for really sore mouth. I have been prescribed oramorph which takes the edge off but doesn’t really get rid of the discomfort which is making it difficult to speak and drink. 

  • Just to say that I do use xylocain but it wears off very quickly 

  • Hi Katgi 

    Is it the immunotherapy that’s making your mouth sore? 
    Maybe you could get some help from your oncologist. 
    Ulcers respond well for a short time to Difflam. Gelclair and Caphosol are soothing but I don’t know if that’s the problem. 
    You can swish the morphine round your mouth before you swallow and it might be worth getting some sustained release morphine to take twice daily. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi KatgI

    sorry I can’t add much to what Dani has said already. She’s given some sound advise don’t know how often you are having immunotherapy but maybe a call to oncologist might help you. 
    good luck hope you get the pain sorted soon 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you, I am hoping that the oncologist will have some ideas. I already use fentanyl patches. It may be that I just need to take larger doses of the oramorph, at the moment I am on 5 ml every 4 hours though I sometimes take it more often. What is the sustained release morphine like?

  • Hi Kathi, can I ask what size fentanyl patches you are using?

    I cant remember the exact numbers but I think I had the 25mcg ones... Then when coming off them I had the 12.5mcg for a week as a taper.

    Just wondering if you are on the smaller patch?

  • Hi Katgi

       I also used Xylocaine for my sore mouth but only to help with eating. It made a huge difference to me and made eating manageable.

    It does wear off fairly quickly but for me was worth it just to help keep up the calories.  

    The fentanyl patches and liquid morphine did help but the pain was never completely eliminated.

    Regular liquid Panadol really made a difference also and is not to be underestimated.

    Best wishes with your ongoing treatment.

    Lyn

    Sophie66

  • Thank you, it's good to know it's not just me

  • Ah.....Fentanyl is one up from morphine so not an option. Yes you can take more oramorph. That's no problem. My oncologist told me you can take it every two hours if necessary. Best check with your oncologist. I hope you can sort this out fairly quickly

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Yes to the paracetamol. I alternated that with the oramorph. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge