Hi I’ve been on this group for a while now after previous breast cancer and then having my ovaries and fallopian tubes removed due to large ovarian cysts. I’ve had displasia on my tongue for 10+ years and many operations biopsies etc - but clear since...
Hi everyone, on Wednesday 19th I'm having a neck dissection at Leeds General Infirmary. Could anybody share their experiences of what to expect. Recovery time, hospital stay and any tips on being prepared. I've had 35 fractions of RT and chemotherapy...
Not content with prostate cancer which I had treated 5 years ago (all good so far) I seem to have signed up for oropharyngeal HPV16+ cancer too. From neck lump referral (2 weeks after I spotted it) it was 49 days until selective neck dissection/carotid...
Hi everyone. Four weeks ago I had a brain scan, since my radio/chemo I have daily dizzy spells and it was to rule out any issues with the brain. My GP asked to see my today and explained that my brain is ok but they have come across suspicious actively...
Hi everyone, I feel absolutely stupid, I've been diagnosed with neck and tongue cancer, I've had all the tests and biopsies, I was in hospital for a week to have a Peg fitted, what never happened, this was so I could have six week treatment, radiotherapy...
Hi everyone, I wanted to share my experience in case it helps anyone facing head and neck cancer or proton beam therapy. Over about 18 months, I had persistent tearing and swelling around my left eye. It was treated several times as dacryocystitis, and...
Hi, I am looking for information and support from anyone who has had the jaw bone replacement surgery which I am currently waiting to have. I am resigned to the fact that it needs to be done as all other treatments have failed and I am in constant pain...
I have recently being diagnosed with Parotid saliva duct cancer I’m 82 and have been offered ADT therapy (Testosterone) suppressant or surgery by removing the growth from the duct and rebuilding my face by taking a flap from my arm, also removing the...
Hi, Am new to this forum. Was diagnosed with HPV throat cancer in August 2025, radiotherapy treatment ended in November 2025, gone through Sepsis since and am still in recovery. Been left with a really dry mouth and recently very dry lips? Any tips to...
Hi all, I am recently diagnosed with base of tongue cancer which is also in LH lymph node Starting radiotherapy 5th Oct with two bouts of chemo. I have had my mask made and three wisdom teeth pulled. On Thurs I am attended a pre-treatment clinic and...
