Tongue Cancer

Nice to meet you Tempus, but sorry about the circumstances. None of us wanted to be here, but you will find this group offers great support and help. I wish you all the best for the biopsy. 

Hi Tempus and welcome to the Community. Like Marc said, nobody wants to be here but it's good that you found us.

I am Dani and I am 2 years out of RT, no Chemo for base of tongue cancer. I had no surgery either

When did you finish your radiotherapy?

If you have time and inclination pop your details into your profile then we can all have your details at our fingertips when we reply. It saves you having to explain for those of us with heads like sieves.

All the best for your biopsy and keep in touch

Hi Tempus1

welcome to our small community, nine of us wants to be here ,I m 30 month post treatment for tonsil cancer with several affected lymph nodes.If any of us can help just shout out. Well done in getting through treatment.

Hazel

Hi Tempus and welcome.

I also had base of tongue cancer which was diagnosed in May 2018.  I had a robotic surgery to remove the tumour plus a neck dissection followed a few weeks later by radiotherapy.

You're right, base of tongue cancer is incredibly difficult to access for surgery which is why the gold standard treatment the last few years has been chemoradiation.  However, the hospital where I was treated has a robot  which makes surgery much easier and more accurate.

I hope the results of your biopsy are good and wish you all the best in your recovery.

Linda x

Hi Tempus , I will wish you all the best for your Biopsy . I wasnt aware they would do a biopsy afterwards , I am just thinking will I have the same as I have or had  base of tongue cancer. Thanks Regards Min   

Hi Marc

Post treatment biopsy isn’t standard. I had one because I had an avid PET/CT ( a hotspot) at the site of the original tumour. They didn’t find any cancer 

Thanks Dani thats good to know the way everything has been going. Spent the day clearing blockage in Nas tube , Thanks God it cleared. All the Best Regards Min 

Hi min nope biopsies aren’t standard. Mostly done if pet ct scan shows anything. If my n g  tube blocked we used to put a bit of Luke warm tea in via syringe to loosen the gunk if that helps x

Hazel 

Blocked NG tube?
Try something fizzy. Just 5ml of soda water 

Thanks Dani and Hazel . Two great tips . I spent the guts of the day and busted more syringes and it was the last call that saved the day with boiled water in the small syringe using a back and forth action. It took three different nurse to get this one in due to my throat being so sore and thats the way I was heading today. Thanks Regards Min Baking soda or bicarb was recommended also