Hi All, we are just looking to see if anyone has been in a similar situation I think. My sister has had treatment for tongue cancer in October which included operation and reconstruction of tongue, lymph’s taken from neck, radio & chemo. She has had the results from her scan and they have come back with irregular saliva gland which the are unclear what’s going on. Before starting radio they said there was shading of this saliva gland but didn’t do a biopsy as would delay treatment so desired to blast it instead. The consultants have said they are confused as the gland is still the same as before even after being blasted with radio.
Has anyone else had this - the consultant has said it could be damaged but my sister has to have a biopsy which they have said could give a false negative and will have to have the gland removed anyway.
she is so worried and confused, the results said no cancer found anywhere else.
Hello Sister05062871ed
My name is Steph and I’m part of the team who look after the Online Community here at Macmillan. I hope that you're finding the forums to be helpful and supportive.
I'm sorry to read about everything that you're going through with your sister. Whilst you're waiting for further news, it's important that you have some support in place.
By replying here, I will bump your post so that more members might see it and offer you some support. It might be that no one has been through exactly the same experience but members here know what it's like to be impacted by cancer and ongoing concerns.
We also have a Macmillan Support Line if you have questions for a nurse, or just want to talk things through with someone who is there to listen. Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.
If you're concerned about salivary gland cancer, this information from Macmillan might be helpful to have a read through. At the end of the page, there are some links to other organisations who can support you all with head and neck cancer.
I hope this is helpful and that you'll check back in to let us know how things are going and how you're all doing.
