5 week post treatment Tonsil Cancer

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Hi everyone,

Would just like to thank you all as I’ve read through this forum a lot over the last couple of months. It’s been very helpful.

I’m 5 week post treatment for cancer of the tonsil T4N0 5 Chemo and 30 RT. I’ve been very lucky and managed to keep swallowing through the treatment which has meant my recovery has been reasonably smooth.

I am a bit concerned as I have little white spots/ulcers all over the roof of my mouth which make it painful to eat. I was interested to know of other people’s post treatment experience and whether this is the norm.

Seeing oncologist in a few days…

Dan

RadioactiveRaz 1 month ago

Hi DanSpoon

well done on completing treatment and making a good start to recovery. Yes perfectly normal water blisters and ulcers are par for the course. If you’re introducing different foods our mouths tend to rebel. Ask for gelclair when you see consultant. It can help. In meantime salt water and bi carb rinses can help. . Think softer foods for a few days poached eggs are good think toddler type foods for a few days.then start to introduce food again and see if your mouth calms down. Hazel x

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a webinar i did with Oracle explaining the process of diagnosis.

https://oraclehnc.org.uk/oracle-launches-new-webinar-series-to-support-head-neck-cancer-patients

Izzy1984 1 month ago

Hi Dan.

5 weeks is still very early days.

I've had a radiotherapy for my neck (thyroid cancer) and it finished 12 weeks ago.

It is common to have mouth ulcers/sores. That's one of the side effects of radiotherapy.

I was given benzydamine mouthwash to be used from the beginning of radiotherapy until some time after finishing and truth be told mouth ulcers were the only side effect I DIDN'T HAVE Had most of the other ones.

In my case some of the bad side effects only started in week 10 post radiotherapy and it was very disheartening, but they also passed now.

After I felt good for 3 weeks I thought I am out of the woods and then BAM! another problem arose.

I hope you and your mouth feels better soon.

All the best.

Izzy.

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