I've recently been diagnosed with tonsil cancer aged 54..I'm in total disbelief and worried about everything. Although I have been told it is very early and curable. They said the treatment will be 2 chemotherapy sessions and 6weeks of 5day a week radiotherapy and advised me I should have a feeding tube fitted to help maintain my eating incase my throat swells so much.They have also took xrays of my teeth so now im worried they are all coming out. Anyone been through a similar treatment .
Good evening Perry, so sorry to hear about your diagnosis,as a fellow wife I feel for you. My husband had a similar diagnosis,he's now a little over a year post treatment. Our emotions were all over the place at the beginning. At the time we held on to being told that it was curable, but the road to recovery would be long and
bumpy. And it was. The treatment,30 RT and 2 CT,cisplatin were tolerable. My husband had his PEG fitted prior treatment,which was,like a lot of people before have said,a life line as three weeks into treatment,swallowing solids became impossible.As to dental treatment, my husband had one tooth taken out as a precaution,as it could potentially have caused problems. On this note, I wish you all the best for your journey,stay positive. Have you got loved ones to help you through? I wouldn't wish for anyone to go through this on there own. Stay on this site through your journey,there is always someone here to answer questions or give advise. Fellow wife Mel x
Hi Perry. Welcome. Stay with us. There is lots of help here. The treatment is really challenging but most of the acute effects can be mitigated. Take that feeding tube. It’s not swelling as such but pain. Pain makes swallowing nigh on impossible for a lot of us and it’s important to tell your radiographers every day how you feel. They will make sure your analgesia is spot on and will keep you comfortable
Dont panic. This is all doable and will be over pretty quickly.
Here’s a thread about treatment to get you started.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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